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Chemo, vs. nothing?

My dad, who was diagnosed last week with an aggressive form of cancer, Non Hodgkin's Lymphoma, has a choice of low dose chemotherapy or no treatment. They do not recommend the low dose currently, Bec even low dose "may" cause infection that can sometimes be fatal. They said hes very compromised being a stroke victim.
But they said we can always get another oncologist who would be ok with doing treatment. It can potentially eradicate much of the cancer.

OR, the option is to not treat it and go into palliative care. I asked how long he might have, they said anything from several weeks to a few months 🙁 My dad initially refused treatment, but after we discussed further, he said hed like to try treatment, and if hes too ill he'll stop.
What might you choose /hope for a loved one? (Of course it's their actual choice overall)
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DunningKruger · 61-69, M
The wife's mother, when she contracted cancer the second time, refused treatment. She was a long time dying, mostly living in a nursing home because they could no longer care for her at home. From what I understand, she really wasn't interested in much of anything other than sleeping. Of course, she was never really interested in much of anything when she wasn't sick, so it's hard to tell.

I didn't see it myself, but I got the impression that her final months were pretty miserable for everyone.

The first time she had cancer, she did have treatment. It was harsh — both chemo and radiation — and it took a toll on her, but after a few months, she was cancer free and relatively healthy for several years before the cancer recurred.

A friend of the wife's also developed Non-Hodgkin's Lymphoma. She had a lot of trouble tolerating the treatment. At one point, she came over to our house and just broke down crying like a baby because it hurt so much. It was hell for her for many months. Once she was done, though, the cancer was gone. That was almost 20 years ago, and she has been healthy and actually quite happy ever since.

It's an individual choice, and the results will vary because of the circumstances. It may be that the chemo won't do anything but extend your father's life a brief time and make him completely miserable for that time. It may be that it won't be so bad and he'll come out the other side pretty OK. Unfortunately, there's no way to know. It's something he's going to have to decide for himself. Whatever he decides to do, I suggest that you support him as best you can and do what you can to enjoy whatever time you have left together. Hope for the best but prepare yourself for the worst.

I hope this helps you.
Coralmist · 41-45, F
@DunningKruger Thank you for those experiences. I'm so glad it did work for your wife's friend with Non Hodgkin's. My dad has a lung infection too, so it's returned yesterday. I'm thinking more of how the doctor said it will be not good overall to do any chemo in his frail compromised condition. That he could very well suffer a fatal infection and pass sooner, than if he did Palliative. This is just surreal to me. Now I'm feeling guilty for times I didn't go visit him last year at the nursing home. But in honesty he did not care about my bad awful suffering for Years. I was there for him once a week last year, but I wish sometimes now, it was more.
I'll just try to go frequently now, they said he could have months, but also just weeks🙁
Elisbch · M
@Coralmist

Guilt can be very difficult to deal with. Everyone I think would be different. I struggled with it a little with my father who also did not care about all the years of suffering and abuse he brought. However, he went fast due to a really bad heart attack. He was not conscious when we said our goodbyes. Dr's said he wouldn't last the night. In my case, I realized that our relationship was such a waist. He had left so much pain in his wake that it wasn't very difficult for me to accept the end. For me, growing up, the beatings and psychological abuse had over ridden everything else so when he passed, I felt a huge weight had been lifted from my shoulders, especially psychologically. It takes time to sift thru all the emotions. Don't beat yourself up, that will just fester as the years go on.
What ever your fathers decision is, I hope you and your family can find peace in it and be supportive. 🙏🏻
I'm sorry you're going thru all this. It's never easy.
TheRealBarbossa · 36-40, T
I wouldn't do chemo myself, but then again I never needed it so it's only speculation on my part. I might feel differently if I ever do need it.


My biological dad declined chemo when he was diagnosed with thyroid cancer.
His reasoning: it would give him a few weeks longer, at best.

He passed away about 3 months later. I met him for the 2nd time ever a week prior to his passing. It gave us both closure. But that's unrelevant to your question. I just wanted to share it.
TheRealBarbossa · 36-40, T
@Coralmist Yeah, if chemo was a walk in the park, it would be Jurrassic Park. If the options are "a few weeks longer, but in constain pain" or "going on ones own terms" it pretty much speaks for itself.

If we're talking several months or years extra thanks to chemo, that's another matter.

But at the end of the day, it's the patients choice.
FreddieUK · 70-79, M
@TheRealBarbossa Thank you so much for sharing.

@Coralmist This is SW at its best as you share which encourages others to as well. 🙂
TheRealBarbossa · 36-40, T
@FreddieUK It's why I'm here. To share my experiences relevant to other peoples struggles, hoping to help one way or another.
FreddieUK · 70-79, M
It is very much as others have all agreed, his choice. I would never choose FOR a loved one. When my mother was very ill towards the end of her life (93) she had made it clear to us, her children, DNR and minimal intervention was her desire. Had she been 73, her decision would probably have been the same, Death held no fear: indeed she looked forward to it for a few years before her passing. Personal philosophy, the amount of discomfort to be tolerated and the care on offer are all unique to each person. I hope these coming months will offer a good quality of life for all of you involved not least your dad. 🙏
Coralmist · 41-45, F
@FreddieUK Thank you for sharing her experience. Yes so many factors to consider..your mom's absence of fear is admirable 🌻 It is definitely his choosing, we just presented all the facts. He had more time to contemplate after the doctor talked to him about it. We will see what he chooses but at least he's considering possible treatment, even if he stops or even if he doesn't do it after all, he's considering it.
Rabbit420 · 70-79, M
In situations like this I have found that most people, even if it's subconsciously are more concerned with their feelings and more worried about their grief than the actual patient. Families force their loved ones into painful and debilitating treatments in order to keep the "patient" alive so that they don't have to suffer the grief or the loss. People force their loved ones to be kept alive on respirators in hopes that they may recover or a cure may be found even when they are brain dead and they've been told that there is absolutely no chance for recovery. We end up making our loved ones go through a great deal of pain and suffering just because we don't want to go through the pain and suffering of losing them. This is why all these decisions should be left to the patient no matter what, as long as they are mentally capable of making that decision!!!
sarabee1995 · 26-30, F
Cancer has struck my family. More than once. And I was close to both of them. I've seen what treatment is like and what it does to a person.

So ... To your question ... What would I choose if diagnosed with an aggressive cancer? Easy. I live my life for today. Don't get me wrong, I want to live. But if faced with that kind of diagnosis, I would choose however many quality days I'd have left. They can keep their chemo. 🤷‍♀
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KiwiBird · 36-40, F
@sarabee1995 Yes...live life while some quality then VAD. Which is legal here.
My mother was in a similar situation, healthy enough to walk a mile a day, sudden diagnosis of an aggressive cancer. She tried one dose of chemo and then switched to palliative care. I'm glad she gave it a try, and I accepted her decision not to continue chemo.
Coralmist · 41-45, F
@ElwoodBlues Ty for sharing her experience. 🌸
Boeing · 36-40
That is a very hard choice over there. And it's ultimately his to make.
Looking into this for a while, I see that palliative care can be effective, and if faced as an option, like you say, and not as a way of letting go of life, it can have great benefits.
Chemotherapy on the other hand is hopeful, giving the person the benefit of the fight, to be given hope that there is a possibility to be cured.
I believe if palliative care is done right, can also include this hope for treatment, as, if the patient truly makes peace with himself, there have been cases where they were miraculously being brought to life.
Coralmist · 41-45, F
@Boeing That's true, pros and cons with both options. Thank you.
Boeing · 36-40
@Coralmist yes..hold on there, it is a tough period for him and all involved but ultimately he will make the best choice for himself. He's the only one who can do that.
Windigo1 · 70-79, M
That is a hard decision that he must make. My father was 83 and made the decision for treatment for bowel cancer. He died at 98 from heart problems. He said " Its time, "I'm just worn out".
My mother developed an infection from chemo. Complications from chemo took her life.

Chemo saved my sister. It's always a scary, hard decision. Ultimately, it's their decision
Coralmist · 41-45, F
@Bexsy I'm so sorry it led to infection for your mom. 🙁 Many sympathies 🌹 Did she also have an aggressive form?
@Coralmist no, she had breast cancer, they gave every indication that she would beat it. Her reaction to the chemo was quick and devastating.

My sister had the aggressive kind. Her treatment was very aggressive.

She is currently doing very well
Coralmist · 41-45, F
@Bexsy That is such good news for your sister. Again I'm sorry your mom's reaction, 🌼chemotherapy is so toxic overall, I wish it could target JUST the bad cells.
I didn't want to accept the doctor view yesterday that his body just can't even do the low dose chemo. You'd think you want to extend a person's life any way possible. But I'm seeing more now chemo can be destructive in ways, and he said he'll most likely get an infection, and his life will be ended sooner than if he went to palliative care. I really hate cancer😟 There's Got to be a way to cure it one day.
carpediem · M
Best of luck to your father, you and your family. This is a tough one. My wife went through multiple rounds of chemo and survived. So it’s possible but difficult. I am sure your father will make the best choice.

Again, best wishes.
Harmonium1923 · 56-60, M
That is such a difficult decision. For myself, I would likely choose palliative care if the cancer were aggressive, the treatment was likely to be very difficult, and the chances of survival with treatment were still low. I feel like my end would be more peaceful.

Wishing the best for you and your family. ❤
Coralmist · 41-45, F
@Harmonium1923 Thank you friend 🪻
Platinum · M
These decisions are personal and only he can decide what to do....ive been waiting two years for a hip replacement and because of a heart condition they have told me if i go ahead with the op i could have heart attack, bleed to death or have a stroke.. .hard to decide....
JimboSaturn · 56-60, M
I think it's his choice. I think your Dad's approach is the right one.
Julien · 36-40, M
I am so sorry that you’re family has to deal with this
There is no right or wrong answer of course but … I would like to have the chance to fight … even if it’s pointless
I don’t know. But quality of life that’s left does count. I’m so sorry.
FreeorLonely · 51-55, F
I’m sorry to hear this, such sad hard news
Younameit · F
I’d just respect his wishes in that case.
TexChik · F
I think that was their way of telling you his case was terminal.
cherokeepatti · 61-69, F
@TexChik I think age is a big factor too. There was a man in the UK who was refused chemo due to his age and he read up on alternatives and bought over a dozen different things and used them and got his cancer cured that way.
MartinTheFirst · 26-30, M
I secretly think I could have cancer, for me it's no chemo or diagnosis.
PTCdresser57 · 61-69, M
At 72 I would do it and fight!
Coralmist · 41-45, F
@InterdimensionalSideEye He's turning 72 this month
Midnightoker1 · 61-69, M
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