Upset
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My daughter was found in the middle of the night, unconscious and seizing on her kitchen floor.

She's 28 years old, not a child. She was taken to the local hospital where they did a CT scan and informed her that she didn’t have a seizure because if she had, she would have wet her pants. Now mind you, she’s not a lady who holds her tongue, but she felt like a train and ran her down and had no fight in her.

How should this be dealt with after the fact?

Se have a family history of Epilepsy. We all know what it looks like. How can a medical professional say something like this?
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Thevy29 · 41-45, M
I had CT scan once. They found a tumour and removed it and sent me home. Still complaining of headaches and imbalance I eventually got a doc who signed off and getting an MRI and we saw two other tumours the CT scan missed.
@Thevy29

I pray and hope that you will be fine... 🤗🤗
Thevy29 · 41-45, M
@nonsensiclesnail They said it would be too dangerous to go in a second time so I have to get an MRI every 2 years to keep watch on them. Paracetamol is what I have been prescribed for the headaches and migraines. The dizziness, loss of balance, lack of coordination, tunnel vision and the sensation of being drunk, I just have to deal with. 😒 But I cannot complain. There were 12 other kids with tumours in that Hospital Ward. We became friends. I am the only one left.
@Thevy29 that’s heartbreaking!
DunningKruger · 61-69, M
What? She didn't have a seizure because she didn't wet her pants?

That's one of the dumbest things I've ever heard. Complain to the hospital board. Get a new doctor.
@LordShadowfire that is so terrible!! I only wanted to shake him till his nose bled and make him eat her chart.
LordShadowfire · 46-50, M
@nonsensiclesnail I have a pretty twisted imagination. I would never act on it, but some of the fantasies with which I entertain myself are a little on the scary side, lol.
ScarletWitch · 26-30, F
@DunningKruger my mother's bf when I was 11 had seizers. He did not wet his pants from what I can recall. Happened several times.
Scribbles · 36-40, F
Go for a second opinion.
SW-User
My father in law died last February 2022, he first got diagnosed in March 21, they said he will be fine, by June '21 he was in Chemo, they kept telling him that it was nothing to worry about, he was getting progressively worse, they then did every scan etc and cleared him as being ok to have this major and life altering operation, after which he was never the same again, he actually died after the operation and they "saved" him, but he just lived through hell for the next 5 months until his demise


My point, several times by several people he was told it was OK or something and nothing.. I feel like these people don't have a clue
SW-User
@nonsensiclesnail oooh that's awful 😣😭
Montanaman · M
@SW-User Thank you. I realize it's not tv, and they are not without flaws. 😔🤗🤗
Diotrephes · 70-79, M
@SW-User [quote]My point, several times by several people he was told it was OK or something and nothing.. I feel like these people don't have a clue[/quote]

What country do you live in? It has a lot to do with the level and quality of medical care you receive.
What an idiotic thing for someone supposedly knowledgeable to say ? For one thing, it assumes a person always has a full bladder when they seize. I’d want to know if they’d legally swear to that always being an indicator, with no exceptions. They might rethink that reply.
DeWayfarer · 61-69, M
@bijouxbroussard totally agree here. Once knew an epileptic girl. That would have been obvious if she had wet herself.
You know that comment the doctor made about she couldn't have had a seizure and the reason he gave is the dumbest I've ever heard. How dare him. He has no common sense at all to say such a thing or even to believe such a thing, especially calling himself a doctor. This is what I'm wondering as well. How in the world could someone who calls himself a professional and even a doctor at that, say something so stupid? I see now that you wrote this 5 months ago. So how has this all turned out? He has no business being a doctor. How is your daughter doing now?
@cherokeepatti I too have had seizures. Isn't that the most stupid thing you've ever heard a doctor say? He doesn't even deserve to have a license. This really burns me up. You go for help and in need of comfort and this Joker considers you a liar. Furious! My God! How is your daughter doing now? Is she okay?
cherokeepatti · 61-69, F
@LadyGrace I believe the doctors are being taught this. And then the neurologist sees the abnormal EEG readings and understands. It is the pediatricians thinking that the parents are hysterical. Well what the hell are parents supposed to think when they see this happen to a child for the first time. Anyone would get scared.
cherokeepatti · 61-69, F
@LadyGrace yes she is, she had a lot of stress with her father and I had to go to court for that and eventually she got weaned off the medication when she was 17.
NickiHijab · F
[quote]she didn’t have a seizure because if she had, she would have wet her pants[/quote]

That sounds ridiculous and negligent on their part because this doesn't happen to everyone when having seizures.
Also a CT scan checks for abnormalities in the brain not the electrical energy. They should've done a EEG scan too. I think she should push for further testing.

I had epilepsy as a child and was seizure free all throughout my teenage years until recently and my seizures as a child were very different to my seizures as an adult none of which involved wetting myself.
That doctor could not be any dumber! Please find a competent doctor. This guy is an idiot. He must have got his license out of a Cracker Jack box.
DrWatson · 70-79, M
@LadyGrace I wonder whether the person who said that was a physician or merely the CT technician.
@DrWatson Good point.
They are right about wetting pants most of the time, however if she emptied her bladder beforehand that pretty much ruins their premise. Pretty shitty that they automatically discounted everything based off one thing.

Get a second opinion asap, if she has a dr give them a call.

History is huge here, also communication.

Document everything word for word.

Write every question she has, as well as you also. You'll be able to go over them with her provider.

Finally, go to the facility she was seen at amd get ahold of the patient advocate there. They only answer to the CEO and are there only to advocate for you.

One thing you have going for you have experience based off history. As wierd as it sounds, you know what to look for with her.
@TallMtnMedic thank you for this. I did forget the patient advocate.
We have an appointment with her provider, but unfortunately it is all part of the same medical group.
She is making her list of questions this afternoon.
She has a history o this sort of treatment by this hospital going back two years now, where she has been listed as visiting the ER for being "fat" ( 6 months pregnant) and for being lonely.

But the pants wetting thing? I don't mean to sound like a brat, but I have 5 nephews, a husband, a brother in law and father in law and a son who all have epilepsy. They don't wet their pants when they seize, not even during a grand mal. Im nt saying it doesn't happen, but really. how is that an indicator? And given her medical history, everything they know that needs to be dealt with, that they are choosing to not, they sent her home as though she was just looking for attention.

We have her chart where they have documented their own derogatory comments in the past as well as what was said currently. She has been told directly by nurses at the hospital that since it has been sold, it is ran as a business, not a medical practice.

Im just angry.
cherokeepatti · 61-69, F
@TallMtnMedic @nonsensiclesnail I agree with documenting everything. I wish I had done it with my daughter, she had some really weird variety of rashes and I think the doctor didn’t understand what I was telling him. It ended up she also had lupus. I went around and around with her doctors for over 2 years until one finally sent her to a children’s hospital doctor to have testing done.
Snuffy1957 · 61-69, M
I highly distrust people in the medical field these days.. I've had and seen some of them do some really stupid things and say some very ignorant things
@Snuffy1957 Same. It's as though they collectively quit giving a shit.
Snuffy1957 · 61-69, M
Livingwell · 61-69, M
I had a similar encounter with an ER dr that bet his paycheck I didn't have pneumonia. I was sick over 2 mos and could barely breathe. Finally convinced him to do a CT. At the last minute, the results came and said I had pneumonia. 🤦🏻‍♂️
@cherokeepatti Always, Patti. 💖🤗🙏
cherokeepatti · 61-69, F
@LadyGrace For the last couple decades I’ve believed that there was a reason for having to go through so many trials as much as it hurt. There is always something to be learned and relief when each episode is over and I believe that’s how we grow and become stronger and build faith to endure what’s to come. Also the reason I can be so stubborn about certain things and stand my ground
@cherokeepatti

That's true wisdom and Faith, Patti. True understanding. We may not know every reason behind our trials in this life right now but the second we cross over we shall know the unknown. We will also see that was all worth it. After all, Jesus was not even spared of suffering. He suffered so that we could know that he knows exactly what our stuffings are and our trials; that he was human in every way though he was God as well. That he is a not a God without feelings and empathy for us.

I call it God's Waiting Room, which I may also share in a post shortly. There is a plethora of things we can learn in God's waiting room. Sometimes we have to call timeout in the Lord and sit in his waiting room, perhaps because we have gotten ahead of him and we need to learn patience and visit with him more. But even Jesus was not spared hardships, yet they were so necessary and he knew that He needed them, in order to learn certain lessons as he grew up and matured in Spirit. They were all for his good. They are all for our good as well, though we may not realize or understand that at times. There are so many things we can learn in God's waiting room. Sometime we just get ahead of God and rush into things and God has to slow us down and help us take things slower and more thoughtfully so we don't get hurt in the end. I cannot tell you how many great lessons I have learned while in God's waiting room. All so valuable, I treasure them to this day. I could not have done without them though they were painful that I'm very grateful for them and I wouldn't change that for anything in the world. They made me who I am today.

Sufferings have their benefit. There are never meant to harm us. Only to teach us and help us along in life before things get out of hand and hurt us even more. Those painful moments Made Me Stronger and able to persevere the worst without crumbling under the pain and pressure. I've learned what is important in life and why. These lessons are never to hurt us but to help us. We can see this in Jeremiah 29:11. Without them, we could never learn and grow in the Lord and in our lives. They are such a blessing. They are not problems; they are challenges and God helps us Learn and Grow through each and every one, as we trust him. When we know better, we can do better. It's only sad, when we are unteachable and do not benefit from our lesson nor learn from it. In this way, we can also help others, who may be struggling with the same thing and be a blessing to them, by what we learned. After all, I believe we are here to help each other and love each other. If we cannot do that here how will we do that in heaven?

I so love this verse and it has seen me through the darkest nights and most painful moments. There are two of them:


That had to be a scary moment, and that doctor is clearly an idiot who needs to go back to med school. Definitely get a second opinion from someone who knows what they are talking about.
akindheart · 61-69, F
that is BS. my daughter had 4 kinds of seizures. she never wet her pants. A seizure is a seizure. she needs a neurologist. next
cherokeepatti · 61-69, F
I used to have many seizures as a child and never wet my pants. My daughter also had seizures and never wet her pants. The pediatrician didn’t seem to take me seriously that she had a seizure and finally said it was because of that. We had the flu and she had a fever that had come on when it happened. Later on when she was 12 she had more seizures and ended up in the hospital and the neurologist ran brain scans. She did have seizures.
akindheart · 61-69, F
My daughter had absence, petit and grand mal seizures. She didn't wet herself. She needs a neurologist, an EEG, A correct diagnosis and proper meds. They have come a long way in helping seizure patients. Get her to a medical facility
The problem with medicine is there are probably 1000s of conditions that look the same to lay people. And that is why we have medical professionals.

What is possible is that not all docs are great at communicating so although something might not fit a technical definition of a seizure for example that doesn't necessarily mean they are not taking it seriously.

Also although epilepsy can be hereditary most studies seem to suggest the increase in risk is in the single digit percentages.


My suggestion would be to go to the doctor with any questions or concerns and get clarification. But also there is no harm in getting a second opinion.
PaleandPolluted · 36-40, F
I used to have them 20 - 25. Doctors never found anything. They were sleep related, I never wet myself but I did bite my tongue. They seemed to go away after I went on the pill.
reflectingmonkey · 51-55, M
not all doctor are good. I have seen so many mistakes made by doctors. I also had one look up what i was saying on wikipedia and then go " oh, you're right" . one doctor wanted to give me prozac when when i had was actually hypoglycemia, all symptoms of depression dissapeared when i stopped eating sugar and reduced my carbohydrate intake. I told the doctor that I observed that these symptoms appeared when I skipped meals or ate sugar. she answer " I think its depression, here's a prescrition for prozac" .
@reflectingmonkey I know they all are not, and ER doctors are especially under a lot of pressure. one of my favorite moments in the ER was with my mom, and my sister in law who is a nurse was with us. She corrected the doctor over and over and over again until he finally got up and walked out of the room. Im not sure who's arrogance entertained me more. It was a beautiful time and my mom got the care she needed. But I would never ask her to do anything for my daughter or me, because again, arrogance and family stuff.
I really just want her to get the care she deserves. It shouldn't be this hard.
What a stupid thing to tell her.
Montanaman · M
I'd tell them where the bear shits in the buckwheat! Because, obviously they don't have a clue what's going on with her.
im sorry that must have been so scary. had she had seizures before?
@PepsiColaP Her husband says she has, but she has no recollection of it. I've never seen her have one. And being that she is a mom with two tiny children at home alone most of the day, it is a concern of mine.
@nonsensiclesnail thats very understandable. I would be worried as well. I guess you would anyway since it is your child let alone when little humans depend on her too
Docdon23 · M
My wife had a seizure last summer--i was there--and she never wet her pants...
MellyMel22 · F
[i][c=BF0080]That doesn’t sound right. I’d find the best neuro in her area and get another opinion. [/c][/i]
Jeephikelove · 46-50, F
That’s terrible, doctors kinda suck nowadays. I’d get a second opinion. 🤗
Mellowgirl · 31-35, F
I think that people are very insensitive atm.
It's not a personal thing I think it's covid it's really messed with people.
I'm not saying this is right but I think if you can it's best you ask to be seen by someone else.
God forbid anything further happen on this person's watch.

Focus on calming your daughter and getting the right care she needs.
She will need all fbe support she can get. Get well as soon x
smileylovesgaming · 31-35, F
I would just tell her
@smileylovesgaming I'll do that.
smileylovesgaming · 31-35, F
@nonsensiclesnail I would take her to the doctor just to make sure and all
@smileylovesgaming That is exactly what I'm going to do. Thank you.
TrunkZ · 56-60, M
Sorry to hear.

Have they given any kind of diagnosis? Even if seizure was ruled out, it is clear that something happened that needs to be evaluated. If this doctor didn't come up with a diagnosis and didn't make any referrals or order other testing then definitely get her to someone else.

I hope it turns out to be nothing serious 🙏🙏
twiigss · M
So a CT scan and/or MRI isn't going to show anything after the fact. Your daughter needs to get in to see a neurologist, and have what is called an EEG. The nurse hooks all these wires up to your head, and then runs a scan, to look for seizure activity.

When I was 23, I was woken by my GF at the time, who found me passed out on the floor. Went to the hospital, no issues were found so they sent me home. Two weeks later she sees me having convulsions in our bed, and I've been on Dilantin ever since.

Word of advice: If and when you are able to get in with the doctor, if they just blindly throw dilantin as the only solution, look into other prescription medications first. Dilantin destroys teeth from the inside. But, it's worked for me for 22 years now.
MarkPaul · 26-30, M
Well, we don't always get our diagnosis right the first time. More information was probably needed. I would have run a series of tests though before confirming any condition, especially under the circumstances you mention.
I have a friend who did that a lot and it was caused by extreme stress and anxiety after something happened to her... and shes 37
@SimplyMeChantou Epilepsy runs in my husbands side of the family. More of them have it than don't, but it's never been a major issue. Just something to be dealt with. But my daughter has so many other things going on at the same time and they act like she's just seeking attention.
@nonsensiclesnail ask for second and third opinion if needed, i always say a mother knows best

We know our kids better than anyone else regardless of the age
@SimplyMeChantou
that is uncomfortably true.

Im going to admit something, and I know better... Im not really superstitious, or at least I dont think of myself as being so. In my family history, all through my mothers side, going back at least 5 generations, if I'm counting correctly which I am now seeing that I am not. I think thats all I have found and have been told about, the eldest daughter of every other generation has died, leaving her young children to be raised by the father and his new wife. It goes, dead mom, child raised without mom and then her daughter is the one that dies, leaving her children to be raised by a step mom. I am the first one in generations to not die. My mothers mother is the one that died, so it should have been me next. But, my children are grown and Im alive. And part of me, the one that that lives in "what if" is so scared my daughter will be the one. The realist in me knows better to even think this for a moment. But the 'what if' in me is shoving the realist in the closet.
SW-User
Medical professionals don't know shit half the time...they were a pain when my mom got ill. Even when we went private they weren't much help.

To think I used to want to become one of them 🙄
assemblingaknob · 26-30, F
Jeez. Go to another doc. Just because someone has a degree won't make them good enough to diagnose. It's always best to get more than one opinions on diagnoses.
Im so sorry that musta been legit terrifying <3
@TryingtoLava you're very sweet. I wish you could too 😊
I really jsut want someone to listen and act, someone in the medical field. And no one wants to.
LordShadowfire · 46-50, M
@nonsensiclesnail Google malpractice lawyers.
@LordShadowfire With her chart from over the last 2 years, I am considering it. But malpractice is such a hard thing to prove and so very expensive. She can't afford it. I don't want to have to. It will cut into my helping them stay afloat, and damnit, we shouldn't have to. Basic medical care shouldn't be this hard to get.
RosaMarie · 41-45, F
ER docs see a lot of things and once she's stable she's not their priority. Get her in front of your PCP and a neurologist.
Carissimi · 70-79, F
They don’t care these days. The health system is corrupted with Woketards. Get a second opinion. Does she have a family doctor?
Captainjackass · 31-35, M
Yeah go to a specialist. I had a ct scan and they found nothing but I’m still suffering and can’t get help.
Gangstress · 41-45, F
That's the stupidest diagnostic i have heard.
Please insist on an mri.
Im sorry i hope shes ok
Medical professionals are Humans too. ( I mean sometimes be a dumbass)
@NotSureAboutMyUserName I like your user name.
And I agree. Three of my family members are nurses and not always as smart as they feel they are. Like the rest of us.
TheMichiganNudist · 22-25, M
Wetting your pants is not a requirement of a seizure. My mom has been epileptic most of her life and I’ve helped her through a few of her episodes and I haven’t seen her wet herself once. My older sister’s one and only epileptic episode, however, she did. While bladder release can be a side effect of an epileptic episode, it’s not a requirement so I don’t know what those doctors were on. I recommend a second opinion.
SW-User
I’m soo sorry, please get a second opinion and I hope your daughter will be ok.
DrWatson · 70-79, M
I once had a girlfriend who had seizures rather often. She never wet her pants.
MyNameIsHurl · 41-45, F
Yeah get a second opinion, and sorry, that is really scary
ScarletWitch · 26-30, F
Did she take anything you are not aware of?
Belladonna · 41-45, F
I wish I knew how to deal after the fact. I'd suggest seeing if you can get her an MRI. I've had seizures where I didn't wet my pants. I have no idea why a medical professional is saying that. It's ridiculous and frustrating and infuriating. I hope you can get her the help she needs. <3
scooogy · 31-35, MVIP
I'm no expert on this, but I've been told that you have different grades of severity with epilepsy. No offense, but american meds seem like "I'll make this a 2 minutes case so I'll get my money."
go get a second opinion and head ct or mri to evaluate more could be low sugar making her shake maybe id still get more test done .
Snuffy1957 · 61-69, M
Apparently that was no medical professional.. but rather an idiot that doesn't belong in the medical field!!
Wow!! What an idiot doctor to make that diagnosis without any physical tests and examinations....
Dino11 · M
Does she have a primary physician? Have them handle this.
@Dino11 Her primary care physician is her only recourse at the moment. But im fearful because she is part of the same hospital group and she as well disregards my daughters medical conditions as not a big deal.
In fact, she has had gallbladder issues for the last year, but she was pregnant and they didn't want to treat her for that at the time. Now her doctor has decided her gallbladder issue is a non issue. Thats what she called it. A non issue.
she has a growth on her pituitary gland and cyst on her overtires. Her doctor doesn't see these are real problems that need to be addressed either.

Im so tired of doctors not doctoring.
Dino11 · M
@nonsensiclesnail They have to be the ones to recommend a specialist.
Iwillwait · M
Dunno. They're all just "Practicing Medicine," so the Margin for Errors always exists.
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