1-50 of 122
Eddienj Β· 70-79, M
That approval should be automatic Mae? I am on Medicare with secondary insurance and have had many MRI'S and no problems with payments. You doctor should take care of you need authorization. It not right your in pain.
SweetMae Β· 70-79, F
FINALLY! The doctors are putting me on a pain management program! I am very thankful. And I did miles at the gym too!
View 26 more replies Β»
Eddiesolds Β· 61-69, M
@SweetMae you're welcome Mae!
SweetMae Β· 70-79, F
Today I got the results of the nuclear full body scan. They found no abnormalities, no cancer, no arthritis and no inflammation. This is VERY good news!! ποΈπΉππ₯³π
SweetMae Β· 70-79, F
I took my final test today. The specialist believes I have a nerve disease. It is too early to determine which one. I will be going back to my primary care physician for pain management. I got the green light to go back into gym training again!! Yay! I want to thank everyone who has prayed for me or sent me messages of encouragement though this long process. I truly appreciate each of you! It is a blessing to belong to such supportive group of caring people! π€ππ
SweetMae Β· 70-79, F
@Keepitsimple Thank you! π€
SweetMae Β· 70-79, F
Update: I took the nerve and muscle tests. They are very painful. But, I am glad they are done now. I will wait to hear the results.
Heartlander Β· 80-89, M
@SweetMae Sending prayers and best wishes for favorable results there. I hope they are managing the pain, even if they don't yet know what's causing it.
SweetMae Β· 70-79, F
@Heartlander Thank you!! βΊοΈ For your prayers and you kind wishes.
SweetMae Β· 70-79, F
Finally! I will be having the MRI on Tuesday! That is very good news for me.
SweetMae Β· 70-79, F
@Eddiesolds I am trying to stay strong!! βΊοΈ
Eddiesolds Β· 61-69, M
@SweetMae π€
SweetMae Β· 70-79, F
@Eddiesolds π€
SweetMae Β· 70-79, F
I am very disappointed. The MRI didn't show any problems with my back. The pain seems to be growing more intense every day. I am hoping that I will find some answers soon.
SweetMae Β· 70-79, F
@Stillwaiting Thank you so much. βΊοΈ
SweetMae Β· 70-79, F
Update: I saw a neurologist today. He will perform the Nerve Conductive Study again in May on my arms and legs. Hopefully I will have the results of the full body bone scan by then. π’ I was hoping I saw the last of all those needles!
Gameknot Β· 56-60, M
I sure wish you some relief.
SweetMae Β· 70-79, F
The pain is becoming unbearable again. I thought I was making progress! π
SweetMae Β· 70-79, F
I had the bone scan. I'm home again. All I can do now is wait for the results.
SweetMae Β· 70-79, F
Thank you everyone! I'll post the results when I can.
SweetMae Β· 70-79, F
Another update:
I saw the rheumatoid specialist today. He believes I have an autoimmune disease. There are 80 different autoimmune disease so, it might take a while to find out which one I have. He has ordered more tests. He prescribed muscles relaxers and quinine. The good news is that I can get back into the gym now. πͺ
I saw the rheumatoid specialist today. He believes I have an autoimmune disease. There are 80 different autoimmune disease so, it might take a while to find out which one I have. He has ordered more tests. He prescribed muscles relaxers and quinine. The good news is that I can get back into the gym now. πͺ
SweetMae Β· 70-79, F
@Heartlander Thank you so much! It was a good turning point.
SweetMae Β· 70-79, F
Thank you everyone for you love, prayers, wishes and kind words. I finally got the pain medication I needed so badly. Hopefully the MRI will be approved soon.

SW-User
@SweetMae I am so glad to hear that you are feeling better Mae!
SweetMae Β· 70-79, F
@SW-User Thank you. That was a little scary.

SW-User
@SweetMae Oh I'll bet!
Harriet03 Β· 41-45, F
π€π·β
SweetMae Β· 70-79, F
Update from Doctor: It is an autoimmune disease. Some are hard to diagnose. I need to learn to live with symptoms and continue taking the quinine.
SweetMae Β· 70-79, F
@Keepitsimple Thank you so much. The quinine is helping a lot. I have to expect good days and bad days.
Keepitsimple Β· 51-55, F
On your bad days you need go take it easy and ask for help!@SweetMae
SweetMae Β· 70-79, F
@Keepitsimple Thank you. I will. I am thankful for my friends here like you! π€
hunkalove Β· 70-79, M
That's sad. I hurt my back several weeks ago and I have been in a lot of pain. It's getting better, but I feel so old and hopeless. Get better!
SweetMae Β· 70-79, F
On Friday I will be having a full body necular bone scan.
mrbuddhawannabe Β· 56-60, M
@SweetMae I cannot imagine the pain and frustration this disease is causing you. I wish you rapid healing. Have you considered alternative ways of dealing with it besides traditional Western medicine?
SweetMae Β· 70-79, F
@Keepitsimple I will make an update here! Thank you. π€
SweetMae Β· 70-79, F
@mrbuddhawannabe Thank you. π€ I'm just having tests for now.
Oh Mae. I wish everyone's respect, love, and admiration for you could dull pain. You would be in exquisite comfort forever if it could! I'm so sorry. My prayers, sweet Mae.
luctoretemergo Β· 61-69, M
Hi
Kind of new to SW so Iβm finding my way. I know this post is old but howβs your pain? I have a few cricks and creaks I have to work through now and then but nothing too bad. Hope itβs better. You look amazing no matter what - which does help!
Kind of new to SW so Iβm finding my way. I know this post is old but howβs your pain? I have a few cricks and creaks I have to work through now and then but nothing too bad. Hope itβs better. You look amazing no matter what - which does help!
SweetMae Β· 70-79, F
@luctoretemergo I take full advantage of them. π
luctoretemergo Β· 61-69, M
I can see that
This pic is definitely a good day!
This pic is definitely a good day!
TwiddlerofThumbs Β· F
π€ that sounds so hard!! I hope you can find, at the very least, a moment of comfort today.
SweetMae Β· 70-79, F
@TwiddlerofThumbs Thank you so much. Maybe I will soon.
CCMorgan Β· 51-55, M
Argh! So sorry to hear this. Sending good vibes, and hoping things improve quickly! π€
Fungirlmmm Β· 51-55, F
Prayers coming π€ for the best path to complete recovery.
SweetMae Β· 70-79, F
@Fungirlmmm Thank you so much!! π€
SweetMae Β· 70-79, F
I guess I will have to wait another week. My appointment was rescheduled due to winter storm Wayne!!
Heartlander Β· 80-89, M
@SweetMae
I had already said "damn snow!" a few dozen times this winter and thought that was enough. But had to say it once again after reading your message :)
The step-by-step process of elimination is a royal pain. Even at the "all under one roof" type hospital systems there's an anxious time-gap as they pass us from one specialist to another.
Hang in there. There really is a light at the end of this tunnel.
I had already said "damn snow!" a few dozen times this winter and thought that was enough. But had to say it once again after reading your message :)
The step-by-step process of elimination is a royal pain. Even at the "all under one roof" type hospital systems there's an anxious time-gap as they pass us from one specialist to another.
Hang in there. There really is a light at the end of this tunnel.
SweetMae Β· 70-79, F
@Heartlander Yes, there is. At least they will take me next week.
SageWanderer Β· 70-79, M
I donβt understand why you canβt take anything for pain even without the MRI. Canβt he try to treat what he suspects just to give you some relief?
Heartlander Β· 80-89, M
Ohh nooo .... I'm adding you to our prayer list.
I pray that the insurance issue gets resolved immediately and there's a relief from the pain. Hopefully the MRI can point to quick and sustained repair and relief.
Orthopedic pain feeds itself. But physical therapist and pain killers can be like miracle workers.
Pain killers prescriptions are under increased monitoring now. Some require urine or blood test to confirm that the prescribed patient is actually the one taking the medicine and not passing it o or selling it to someone else. I'm personally aware of two people who died because of OD on prescription pain meds. Frightening. Also frightening is that the increased oversight is causing serious pain and suffering for people in pain.
I pray that the insurance issue gets resolved immediately and there's a relief from the pain. Hopefully the MRI can point to quick and sustained repair and relief.
Orthopedic pain feeds itself. But physical therapist and pain killers can be like miracle workers.
Pain killers prescriptions are under increased monitoring now. Some require urine or blood test to confirm that the prescribed patient is actually the one taking the medicine and not passing it o or selling it to someone else. I'm personally aware of two people who died because of OD on prescription pain meds. Frightening. Also frightening is that the increased oversight is causing serious pain and suffering for people in pain.
SweetMae Β· 70-79, F
@Heartlander Thank you. I appreciate that so much. I am doing PT three times a week. They gave me oxycodone but that does nothing for nerve pain. At least it helps me to get some rest.
Heartlander Β· 80-89, M
@SweetMae If is hasn't already been mentioned, you may want to see a pain specialist/physician. They have a pretty big bag of cures that may lessen and possibly eliminate the pain ... epidurals, ablation procedures, pain killer meds, topical applications, patches, physical therapy.
One would hope that the pain can be treated independently of whatever the underlying issue. Sometimes the underlying issue may not have good fix, or a fix may be too risky, but a painfree life is still possible.
One would hope that the pain can be treated independently of whatever the underlying issue. Sometimes the underlying issue may not have good fix, or a fix may be too risky, but a painfree life is still possible.
SweetMae Β· 70-79, F
@Heartlander I will certainly check into that. Thank you so much.
SweetMae Β· 70-79, F
Update: I wont hear any results on the bone scan for at least another week. I appreciate all your prayers and kind wishes. π€π
Fernie Β· F
NO CANCER !! NO CANCER !! NOOOO CAAAANCER!!!!! SweetMae has NO CANCER!!!!!π
bijouxbroussard Β· F
SweetMae Β· 70-79, F
@bijouxbroussard Thank you! Not yet. I have to see my primary care physician for that. π€
ContributorJo Β· 51-55, M
So with the updates ended, how have things turned out? Are you doing better? Did the rheumatologist have any answers?
MellyMel22 Β· F
I was gonna say what about a rheumatologist and then I saw you added that.. I hope you feel better, I know itβs rough π
SweetMae Β· 70-79, F
@MellyMel22 It has been rough. The muscle relaxers don't seem to work any more. I am hoping the rheumatologist will help. Thank you for your willingness to help. βΊοΈ
MellyMel22 Β· F
@SweetMae You're welcome.. I canβt believe how long youβve been waiting..

SW-User
So glad I live in the UK with the NHS I don't have these worries thankfully
SweetMae Β· 70-79, F
@SW-User I am glad that you do too! I wouldn't want anyone to experience what I have these past two weeks.

SW-User
@SweetMae they never question the treatment
SweetMae Β· 70-79, F
@SW-User It wasn't questioned. The request was held up over the holidays and then sent to the wrong person.
MellyMel22 Β· F
What kinda pain and where?
SweetMae Β· 70-79, F
@MellyMel22 Thank you. I have used the most heat, heating pads too.
MellyMel22 Β· F
@SweetMae I hope you feel better soon π
SweetMae Β· 70-79, F
@MellyMel22 Thank you. βΊοΈ
pennynoodles Β· 56-60, F
I'm sorry to hear that you are in so much pain, it must be difficult and frustrating for you. Do you have such thing as a TENS machine over there or similar?
Platoscave Β· F
@pennynoodles Good suggestion in my opinion!
Platoscave Β· F
thanks Sweet...please feel better. Cannabis could help too maybe...
SweetMae Β· 70-79, F
@Platoscave I certainly can try that.
Hi Mae
I did not know.... I feel so bad about not knowing this and even worse, about how you feel...
I am so sorry to know that you are in such a pain....
My thoughts are with you and you'll be kept in my daily prayers...
Thank us for updating this step by step...
π€π€β€οΈ
I did not know.... I feel so bad about not knowing this and even worse, about how you feel...
I am so sorry to know that you are in such a pain....
My thoughts are with you and you'll be kept in my daily prayers...
Thank us for updating this step by step...
π€π€β€οΈ
GeorgeTBH Β· 31-35, M
That sounds so incredibly hard I'm so sorry you have so much pain π€π€π€π€
This comment is hidden.
Show Comment
This comment is hidden.
Show Comment

SW-User
Oh no, I'm sorry. It's a game of hurry up and wait with insurance and the medical field.π€
Nerve blocks before surgery also advised.π
Nerve blocks before surgery also advised.π

SW-User
@SweetMae I hope you get it straightened out soon. As a girl with many health issues..fight like hell for new dr's girlie. I check em off one by one until I get one willing to do anything and everything!!!
SweetMae Β· 70-79, F
@SW-User Thank you so much! ππ€ I will definitely keep fighting.

SW-User
@SweetMae Always, loveπ€π₯°

SW-User
Why would they disapprove? and why can't you take anything for the pain? And I'm so sorry!! π
SweetMae Β· 70-79, F
@SW-User I have some of that. Thank you!

SW-User
@SweetMae YW I hope they call soon.
SweetMae Β· 70-79, F
@SW-User Thank you! I hope so too.
Platoscave Β· F
Hot baths?
I feel the pain slipping away as I imagine.....
I feel the pain slipping away as I imagine.....
SweetMae Β· 70-79, F
@Platoscave I appreciate that. Thank you so much.
Platoscave Β· F
@SweetMae I want all this from everybody... to help you!!π§ββοΈ
SweetMae Β· 70-79, F
@Platoscave It is wonderful to have such good friends here.
ReneeT Β· 61-69, F
Hopefully the MRI will give you some answers and then on your way to feeling better Mae. Keep me informed.
Carissimi Β· F
Mae, I am so sorry you are suffering. Iβm not on Medicare yet, but itβs getting closer. Iβm not hearing good things about it. I hope you find relief soon. Hugs.
mountainman1234 Β· 70-79, M
If you ever need some to vent on I will be glad for you to vent on me ,, I will listen and only give advise if you ask for it ,, and it will be an honest answer ,,,,
SweetMae Β· 70-79, F
@mountainman1234 Thank you so much. I appreciate that. βΊοΈ
mountainman1234 Β· 70-79, M
@SweetMae you are welcome ,,,
Stillwaiting Β· M
Hope you get that MRI and are on your way to feeling better soon
SweetMae Β· 70-79, F
@Stillwaiting I have called everyone. I am going to sit in the doctor's office and complain until have a referral tomorrow.
Stillwaiting Β· M
@SweetMae Ugh .. sorry to hear its been such a challenge. Fingers crossed for you. π€
SweetMae Β· 70-79, F
@Stillwaiting Thank you so much.π€
braveheart21 Β· 61-69, M
What did the march appointment bring up.... Good news I hope
braveheart21 Β· 61-69, M
Good to hear Mae... π€π€π€π€@SweetMae
Peaches Β· F
My prayers are with you!ππΌπI'm having some issues as well and just did an MRI yesterday.
Anonymartyr Β· M
I live in constant pain and there is no coverage for any of my medications . So much for Canada's "free healthcare".
SweetMae Β· 70-79, F
@Anonymartyr I am sorry to hear that. π€
Cervincio Β· 61-69, M
Recently thought I was about to go through the same tests for my hip. Took two months before it finally subsided. Hope you see it vanquished soon!
LarrysReflections Β· M
I'm so sorry to hear about your pain, but happy to hear that you have the MRI scheduled now. May they find the source of your pain. Prayers
SweetMae Β· 70-79, F
@LarrysReflections Thank you so much! βΊοΈ I appreciate your prayers.
acpguy Β· C
Sorry that I just noticed this post and sorry to hear about your pain. I had back pain for several years and nothing helped either drugs or PT. One thing did help however and that was bio-feedback which worked well for that at the time and I continue to use the methods 30 years later. It worked well for me and might be worth a try. It is a form a of meditation and you can use it for any area of your body and mind. I haven't seen anything advertised for classes anymore but you can get info on it by looking on the web.
Good luck I hope you feel better.
Good luck I hope you feel better.
luctoretemergo Β· 61-69, M
I think myself and all your cyber admirers wish you all the best of luck - meaning hope they find the cause and that the cure within reach!
SweetMae Β· 70-79, F
@luctoretemergo Thank you so much. I appreciate that! βΊοΈ

SW-User
That's good, I hope that you recover soon from your health. Stay fit and healthy π, take care of yourself
SweetMae Β· 70-79, F
@SW-User Thank you so much! βΊοΈ

SW-User
@SweetMae you are always welcome dear ππ€
ReneeT Β· 61-69, F
So sorry to hear that Mae. I hope the approval comes very quickly.
Pinkstarburst Β· 51-55, F
I'm so sorry you're in pain Mae. I wish there was a way for me to help. Praying this is resolved soon sweet friend.
SweetMae Β· 70-79, F
@Pinkstarburst Thank you so much. I appreciate your prayers. βΊοΈ
1-50 of 122