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Would you say something?

My dad is getting worse in hospice..just two days ago he was sitting up for a few minutes in the morning and talking normally. It was really awesome. He occasionally slurs and is very weak from aggressive cancer..
But today I can't even wake him, he's been in hospice one week today.
His roommate has his TV up loud on Westerns , so there's lots of gunshots. It's not obscenely loud but pretty loud and I'm so damn anxious of ever putting someone out or even asking a small request. 😟 I don't know whether to ask if he could turn it down a couple notches as my dad is nearing the end. I don't know if it's really affecting my dad though..he's in a deep sleep. Would you say anything or just let it go?
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IM5688 · 70-79, M
He may not actually be sleeping due to his illness. Usually, when it gets very close to the end for someone, they give the patient higher doses of pain meds. This usually knocks them out, (although not always completely.) Many times they can still hear what's going on even if they cannot respond.
I went through this with my daughter also. She would appear to be sleeping or knocked out but as soon as she heard a nurse walk in, she was alive with energy. I don't know if it was because she wanted to be alert for the nurse or because she was fearful that the nurse was going to do something that was going to cause her pain or discomfort.
Baybreeze · 41-45, F
@IM5688 Yes sometimes he appears sleeping deeply, and then heard us and says what? But today he wouldn't wake up at all for over an hour, even talking loudly to him. He finally did. I asked him if he could hear the TV when he was sleeping he said no. So hopefully it'll be ok the rest of the night.
Many warm thoughts for you about your daughter 🌺
JoyfulSilence · 51-55, M
It never hurts to ask.

My roommate in the rehab home I was at in 2023 often would fall asleep with his TV on. I'd shut it off.

Yet he also watched a lot of things on his phone. Lots of Perry Mason. For me, it was like a non-stop radio show. I could hear but not see. We had a dividing curtain. But it did not block noise!

Gosh, I got so sick of the Perry Mason theme, LOL! But Perry always managed to get people to confess under oath!

I also could smell things, too. My roommate could not stand or walk so wore a diaper. To get him into his wheelchair, they had to roll in a crane and lift him. Space was tight so when that happened I was trapped. And it was behind the curtain so I never saw him being lifted. His wheelchair was often in the way, too. I had to use a walker.

Gosh, I hated that place.

I hope if it ever happens again I can afford a place with my own room. Yet who knows. I will probably be on Medicare and have to accept whatever they are willing to pay.

P.S. My mom has bad health now. She has been having eye problems with multiple surgeries. They fix one problem then something else happens. Now her left eye is a blur. She can see light, vague color, and fuzzy shapes, but nothing sharp or well. She may get some vision back, but maybe not. She had a "detached retina". Her other eye is OK.

Both my parents are miserable now. She still likely has quite a few years ahead of her, since her mom is nearly 100. Her dad died younger only because of lung cancer due to smoking. He might still be alive, otherwise. How well will my Mom live out the rest of her life with only one good eye? I am glad she has Dad around. I told her to get a smartphone with the Uber app!
Baybreeze · 41-45, F
@JoyfulSilence It's difficult because of that curtain yes, we can't see the roommate but hear the loud tv 🙁 I did ask my dad if he could hear it while asleep and he said no. But I still may ask the roommate as the days get nearer, which could be any day. It's just surreal he was only diagnosed three weeks ago🥺
My mom had an eye surgery that went wrong and now she's on permanent eye drops for life or they said within two weeks the eyesight will be gone completely, if she didn't.. luckily she said the dizziness has improved but it's still a damaged eye.
JoyfulSilence · 51-55, M
@Baybreeze

So sorry for all the pain and suffering in your family, including with you.

I am worried about my eyes, too. I have to visit a doctor for eyeball injections, once every three months. They are helping, yet barely. My doctor says things are not getting worse but not getting that much better. He is still worried and still wants to treat me.

But I do notice an improvement, though. My floaters are gone and the faded colors are sharper. I used to get injections once a month, so once every three months is a good sign.

There is a laser option and surgery, too. I already got lasered (before the injections). They cannot do more with a laser. I am not sure what the surgery would do. Maybe clean out floaters?

I also learned a year ago I am developing cataracts. So someday I may need surgery for that. My mom had cataract surgery and one benefit is she no longer has to wear glasses. But having good lenses will not fix ger retina. She would gladly wear glasses again in exchange for a healed retina!
Elisbch · M
I'm sorry, not trying to pry.... I was wondering if your dad is on a morphine drip? If so, that could explain his jump from the loud noise and still appear to remain asleep. People on a morphine drip can have a range of agitation if disturbed when the drug has sedated them quite a bit. My mother was on this when she was in hospice and the hospice nurses there told us a little bit of what to expect with people on a morphine drip.
Elisbch · M
@Baybreeze

Is it possible to call and ask about the pill for the secretions? It might help put your mind at ease?
COPD generally causes people to cough up phlegm daily but it could be different in everyone and what stage they're in.
🫂🙏🏻❤
Baybreeze · 41-45, F
@Elisbch I didn't think of it until now, about his secretion pill ...it's almost midnight I'm not sure if it's too late to call ? They said it was pneumonia a week ago in the hospital but yes I do believe it must have been COPD for several years.
Elisbch · M
@Baybreeze

IMHO... never hurts to ask (call) 🤗😉.
SageWanderer · 70-79, M
I’m actually surprised the staff hasn’t intervened. But without being there I can’t really say what effect it has on your dad. I do know that even when things are getting close to the end and it seems that they’re in a deep sleep hearing is still there. So, if nothing else I would mention it to the staff so you can spend quiet time. Peaceful vibes for both of you.
The roommate may be hard of hearing..... And that is why he has it turned up so loud.

Personally.... as long as it isn't negatively affecting your dad... I wouldn't say anything.

Just draw the curtain and carry on.
Baybreeze · 41-45, F
@Threepio He said weeks ago he wasn't hard of hearing, I think my mom asked him..I did let it go.
Cigarguy · 41-45, M
I wish I had a better answer for you but I've never been through this. I might suggest you turn it down a bit while you are there. Tell him why you did and let him know you will return the volume back when you leave. Keep it calm and peaceful. If he doesn't want you to just let it be. Hold his hand if he will allow it and remind him you are there for him and only him
Talk to the staff. Sometimes they hold single rooms open for a patients last week. That way both parties have privacy, you can spend his last moments with him and grieve privately and the roommate doesn’t have to face the reality of what’s happening.
Confined · 56-60, M
You can politely ask him to turn down the TV. Sorry to hear you dad is slipping away. You honor him by being there to see him move into the next life.
Baybreeze · 41-45, F
@Confined I don't know if it's rude to ask, to turn it down? I just feel awkward asking. But maybe I'll let it go.
Notsimilarreally · 31-35, F
@Baybreeze I don't think it's rude or out of place. They may also have headphones the roommate could use. Ask the nurse about that.
whowasthatmaskedman · 70-79, M
Let it go. As long as it isnt disturbing him, what is the harm? You know the journey your father is on. But the other person is on their journey too.😷
Boeing · 36-40
Each chooses a different way to handle it, I would ask politely if they could turn the volume down a little.
whowasthatmaskedman · 70-79, M
@Boeing Or maybe offer to buy them headphones..😷
AngelUnforgiven · 51-55, F
Is his roommate pretty alert? Is he awake and focused and actually watching tv or is it just on as he sleeps as well? Depending on his wherewithal to communicate i would ask him first, if he could, if hes unable to then i would ask the staff.
chuck7882 · 61-69, M
I would avoid direct confrontation with the roommate. Thats the last thing you need to deal with right now. But you might want to mention it to a staff member and maybe thry can handle it
Banksy83 · 41-45, M
He doesent deserve to pas away to the soundtrack of some old western movie .I would speak up if I were in your place make sure he passes with dignity.
Some1somewhere · 36-40, M
Maybe if your nervous about saying something , talk to the staff ?
as long as your dad isn't agitated by it i'd let it go 🫂
Baybreeze · 41-45, F
@beermeplease I saw him jump when a gunshot was on, in his sleep, but that was few days ago. I think he's in an even deeper sleep now☹
FrugalNoodle · 46-50, M
Maybe ask if the volume could be turned down.
Musicman · 61-69, M
Definitely ask him if he could turn it down. Sadly it sounds like your dad is coming to the end. 💔😢

 
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