Switching to LemectalI was on Dilantin for 20 something years and I had a seizure. Doctor switched me to Trileptal. It was working. But it depletes my sodium. And no doctor wants to prescribe me sodium meds. Now he's switching me to Lamictal. I got to increase the...See More »
Grateful for modern scienceFour years ago today, I was laying on a table at Stanford Hospital having a chip implanted in my skull. Although I am not 100% seizure free, my health and mind have improved tremendously!! I am grateful.
Does your mind escape you? Leave you behind as it takes you to a different realm?Leaving you totally unaware with what you are doing.
Not asking a question here, more just sharing personal bit of myself.I was born with epilepsy, but wasn't diagnosed till I was 42 fricken yrs old. Some P/O resentment to my siblings and teachers and classmates ... but I am thankful I am not effected with the Grand Mals. I'm more likely to appear as though I am stoned...See More »
Have any of you with epilepsy gotten your vaccine yet?Any adverse affect with your meds? I'm on Vimpat & Lamotrigine.
I Have EpilepsyWith everything going on, I had completely forgotten that March 26th has always been a special day for me. It's Purple Day, or Epilepsy Awareness Day. Something a girl in Nova Scotia started a few years ago when she was 11. Like me, she has epilepsy,...See More »
I Have EpilepsyI was just looking at my calendar, and realized that this coming Saturday, the 8th will be the one year anniversary of my surgery in which a chip was implanted into my skull to help deter seizures from happening. The seizures are still coming, but...See More »
I Am Living With EpilepsySo to continue the tale of Christmas with Boyfriend's family.. Obviously once we got back from the Christmas Market I was in no fit state to be around family for a few hours so boyfriend helped me upstairs, helped me into clean clothes and I just...See More »
I Am Living With EpilepsySo I never updated about what happened when boyfriend and I stayed with his family over Christmas. I think the last update I gave was when I'd had the second focal seizure in front of his mum and sister. So, on Christmas Eve we all went to this...See More »
I Am Living With EpilepsyI've had my second complex focal seizure since arriving to stay with boyfriend's family. This morning we were the first ones up and we'd had showers and dressed etc and gone downstairs. Boyfriend asked if I'd be okay while he went for a run because...See More »
I Am Living With EpilepsyIt's been a whirlwind of a day since boyfriend and I arrived at his parents this afternoon. His mum is so lovely. She gave me a huge hug before I'd even got through the door. His dad only got home from work about 20 mins ago so we're waiting for a...See More »
I Am Living With EpilepsyToday my boyfriend is driving us both to stay with his parents for Christmas. His sister, her husband and their two kids will be arriving today as well. His brother and his girlfriend are coming on Christmas day. This is my first time meeting his...See More »
I Am Living With EpilepsyYesterday evening I had a seizure with no aura. That doesn't happen very often for me. I usually get enough of an aura that I can at least sit down on the floor. This time though, no warning at all. I was on my way home from work. Had just got off...See More »
I Have EpilepsyHeading back up to Stanford to see my neurologist. Hope to turn up the chip in my head another half a milliAmp.
I Have EpilepsyI never really took epilepsy to be life-threatening or something that could potentially kill me. I thought that, because I haven’t had a seizure in 5 years and on medication, I’ll be fine. But hearing about someone dying in their sleep after...See More »
I Have EpilepsyWell, the chip has been turned on. I was a bit nervous at first, but it was a very simple task by computer. And with a few tests to make sure it was working as expected, it was done. She turned it on to 1 mA to start. I will go back in about three...See More »
I Have EpilepsyWell, tomorrows the big day! I go back up to Stanford to have the chip that was implanted last month turned on. For the last few weeks, the chip has been getting to know my brain and it's activities. While everything is there, the stimulators just...See More »
I Love Someone With EpilepsyMy daughter has epilepsy and suffers tonic clonic seizures regularly despite being on medication twice a day. She was diagnosed when she was 7
I Have EpilepsyWell, the chip is in, my head is bald, and my skin is stapled!! I'm sure that's a pretty picture! Had the surgery on Friday to implant the Responsive Neurotstimulator chip into my skull & brain. I am told the surgery took about three hours, and I...See More »