I Love Someone With Epilepsy

My daughter has epilepsy and suffers tonic clonic seizures regularly despite being on medication twice a day. She was diagnosed when she was 7

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SW-User

I'm sorry. If the regular meds don't work, are there any trials she might be eligible for?

AllRoundGoodGuy · 51-55, M

@SW-User the meds help but can't completely eradicate her seizures

SW-User

@AllRoundGoodGuy It must be terribly scary for you and your wife. I can't imagine the helplessness you both must feel. I hope they manage to find a new medication that will stop them.

AllRoundGoodGuy · 51-55, M

@SW-User she's my ex wife but yes, at first, it was scary. But now I am used to it and don't panic when she goes into seizure

xixgun · M

I’ve been having petit mal seizures for 30 years. Medical community’s assessment? “Gee, you shouldn’t be having this”

BlueRain · 51-55, F

I’m very sorry. I had a seizure once.

AllRoundGoodGuy · 51-55, M

@BlueRain it's not nice to watch when it happens

BlueRain · 51-55, F

You must feel helpless.

Montanaman · M

🤗🤗🤗

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