I Am Living With Epilepsy
It's been a whirlwind of a day since boyfriend and I arrived at his parents this afternoon. His mum is so lovely. She gave me a huge hug before I'd even got through the door.
His dad only got home from work about 20 mins ago so we're waiting for a takeaway to arrive. I'm in the bedroom having a lie down until it gets here. Which means I haven't met his dad yet. I heard him arrive home but I'll meet him when the food arrives.
His sister is really nice. Her husband is one of those guys who can't help making a joke at every opportunity. He's genuinely funny. And their kids are adorable.
Seeing boyfriend interact with his family is glorious. I like seeing the ways he's similar yet different to his sister. And I love how kind he is to his mum.
I've already had my first seizure in front of one of his family. Sooner than I'd have liked but at least it was a complex focal rather than a Tonic Clonic.
I was in the kitchen with his sisters husband. We were making drinks for everyone. My typical focal seizures involve me losing the ability to communicate, fumbling with my clothes and making strange facial expressions. Obviously a little confusing and/or disturbing when you witness them for the first time. Usually they have a gradual start, so I can sort of exit a room or try to. I must have realised what was happening because apparently I thrust the cup of tea I was holding towards him and said "wait now". And then I went towards the doorway, still holding a teaspoon, shut the kithen door, while still on the kitchen side of it and then sat down suddenly on the kitchen floor.
Poor guy wasn't really sure what was going on. He'd been told I have epilepsy but obviously was expecting a seizure to look different to this. He shouts through to the living room "dude, there's something weird happening and I don't know what it is".
Boyfriend runs into the kitchen, looks at me, looks at his bro in law and says "that's a seizure" and then sits on the floor with me until it's over.
He was clearly shaken up by it and I felt bad. Later on, he was outside having a smoke so I nipped out for a chat (and a sneaky fag) and asked him if he was okay. He said he felt like an idiot. I asked him what he meant and he said that he didn't know that seizures could look like that and that he wished he'd taken time to Google stuff, knowing that I might have a seizure. He apologised for not knowing what to do. That felt so weird. I felt like I should be apologising to him for having the seizure and yet here he was, apologising to me for not knowing what to do. It was surreal.
Anyway, the food is due any minute so I should probably make my way downstairs and meat boyfriends father.
His dad only got home from work about 20 mins ago so we're waiting for a takeaway to arrive. I'm in the bedroom having a lie down until it gets here. Which means I haven't met his dad yet. I heard him arrive home but I'll meet him when the food arrives.
His sister is really nice. Her husband is one of those guys who can't help making a joke at every opportunity. He's genuinely funny. And their kids are adorable.
Seeing boyfriend interact with his family is glorious. I like seeing the ways he's similar yet different to his sister. And I love how kind he is to his mum.
I've already had my first seizure in front of one of his family. Sooner than I'd have liked but at least it was a complex focal rather than a Tonic Clonic.
I was in the kitchen with his sisters husband. We were making drinks for everyone. My typical focal seizures involve me losing the ability to communicate, fumbling with my clothes and making strange facial expressions. Obviously a little confusing and/or disturbing when you witness them for the first time. Usually they have a gradual start, so I can sort of exit a room or try to. I must have realised what was happening because apparently I thrust the cup of tea I was holding towards him and said "wait now". And then I went towards the doorway, still holding a teaspoon, shut the kithen door, while still on the kitchen side of it and then sat down suddenly on the kitchen floor.
Poor guy wasn't really sure what was going on. He'd been told I have epilepsy but obviously was expecting a seizure to look different to this. He shouts through to the living room "dude, there's something weird happening and I don't know what it is".
Boyfriend runs into the kitchen, looks at me, looks at his bro in law and says "that's a seizure" and then sits on the floor with me until it's over.
He was clearly shaken up by it and I felt bad. Later on, he was outside having a smoke so I nipped out for a chat (and a sneaky fag) and asked him if he was okay. He said he felt like an idiot. I asked him what he meant and he said that he didn't know that seizures could look like that and that he wished he'd taken time to Google stuff, knowing that I might have a seizure. He apologised for not knowing what to do. That felt so weird. I felt like I should be apologising to him for having the seizure and yet here he was, apologising to me for not knowing what to do. It was surreal.
Anyway, the food is due any minute so I should probably make my way downstairs and meat boyfriends father.
41-45, F
