My neurologist appointment

So my neurologist is asking me to no longer hold in any of my tics. She feels it is causing me many issues and it's why they are so bad and intense at times. She feels my stress, my anxiety, my sleep everything might improve if I stop holding them in.

I'm not really sure how she thinks this is possible. There are times where I cannot just let a outburst out or pace around like a mad man.

She also feels that if I stop holding them back they could actually be less intense and frequent.

I just don't know it's something to think about. There are a lot of it could, it might and maybes in this plan so I just don't know

Top | New | Old

4meAndyou · F

New ideas and approaches to an old illness or condition can be very challenging and very difficult. Change is NEVER easy.

I would do as she recommends. At least TRY it for a month or so, and keep a diary of what happens.

Also, remember that your thyroid medication hasn't even had a chance to kick in. I believe it will be three weeks next week.

Also, next visit, ask her how you are supposed to function at work if you have to let your tics go.

Cigarguy · M

@4meAndyou I really don't know what to do. I hold back so many tics in situations were I just can't risk having one. And what's worse Joel doesn't have an answer for me either.

HijabaDabbaDoo · F

She's not entirely wrong but I also get your point. I let mine out in other ways if I'm feeling anxious. Humming, singing, tapping my chest or part of my arm. At home, they'll happen whenever they want to.

View 1 more replies »

HijabaDabbaDoo · F

@Cigarguy I see. Has anything helped before? Fidget toys, anxiety rings? I'm not suggesting any of those would completely rid you of the tics but that's never the aim anyway. Just little things to help you in the moment. I guess it's trial and error and finding what fits you if anything

Cigarguy · M

@HijabaDabbaDoo I was told by a doctor that I was to old to try and make changes in them and to keep doing what I was doing because it's better than nothing. I just started seeing this neurologist a few months ago with my daughter

Cigarguy · M

@HijabaDabbaDoo I just started CBIT therapy a few months ago.
I use stess ball and music right now as well

Poppies · 61-69, F

I tend to agree with you that there are situations where you just can't let them out. Can you imagine letting them out at the 12-hour insurance conference, or at a Cub Scout meeting? In your own home, where people understand you, that is different.

Cigarguy · M

@Poppies it's a lot to think about right now. I just don't know what to do. Joel doesn't know either and that's the hard part. He's always got the answers but right now we just don't know

Add a comment...