Neurologist and I aren't on the same pageSo I really like our new neurologist. She's kind, she listens to me. She wants to start CBIT with me and my daughter and I'm ok with this. I've done some research on it and I think it might help me a lot. I mean it couldn't hurt. None of my... See More »
Sleep doctor and neurologist working togetherSo my sleep doctor was not happy with the medications that I'm taking overnight she said it is basically like trying to put a fire out with gasoline she wants to completely change my meds and wants me to stop when I'm taking. Her and my neurologist... See More »
Does anyone here have Tourettes Syndrome? How do you cope and have you found something that really helps that you can share with others here?In your opinion, what helps best. Please serious answers only. I do not have that but I know some who do and thought maybe some of you here that have it, could help.
Homework from my neurologistSo my new neurologist sent me a email with homework. She wants me and Joel to keep track of my tics and outbursts the best we can. She wants to know what I did, my settings at the time it happened, my mood and if it was food related. We don't... See More »
Kinda a fightI guess I wouldn't call it a fight but he was annoyed with me this morning. Before he left for work he asked Hey why do you always make sure the kids and I have there sensory bags, iPad, extra clothes snacks drinks before we go out but you don't... See More »
I am emotionally drained and numb right nowOur daughter's appointment was at 4 pm today. I picked her up and than Joel along the way. Joel's x picked the boys up and took them to volleyball practice. We meet the neurologist. She's new, we've never seen her before. She's a older lady in... See More »
Not looking forward to todayToday we are taking our baby girl to the neurologist. Joel and I have both been keeping track of the possible tic like movement. It breaks my heart but I'm 100% sure it is. It's the same movement every time she does it. A head tilt and a... See More »
Making an appointment for herAs I said my worst fear might be coming true. I have been really watching my daughter since the volleyball games and I have seen movements that have me worried. It happens when she doesn't have her air pods in. Tourette's have made my life a... See More »
