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Neurologist and I aren't on the same page

So I really like our new neurologist. She's kind, she listens to me. She wants to start CBIT with me and my daughter and I'm ok with this. I've done some research on it and I think it might help me a lot. I mean it couldn't hurt. None of my past doctors have even suggested this for me to try. So we'll start next week after our vacation.

No here's my issue. We've been working with our daughter on learning skills to cope with changes. It's important for her to be able to handle them. We have a plan in place and I think it's working well. It's a slow process but she's handled all the changes well.

But again today she asked about being able to see my daughter at her worst moment. Very stressed and with our her sensory bag or air pods. I again very strongly told her no. I told her about the last time my daughter had a meltdown. How bad it was and how long it took her to recover physically and mentally from that. So basically I said there was no way in hell I'd let her get that upset on purpose.

She tried to argue her reasons for seeing her do this a few more times and finally moved on.

Am I wrong for not wanting to allow my daughter to get that upset on purpose. I just can't knowingly allow this to happen. Is she right, is this something she needs to see in person. Shouldn't my first hand experience and telling her the details be enough.

Like I said I like her, she's the first person that is willing to help me. Maybe she is a good fit for me but not my daughter.
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4meAndyou · F
Maybe she can observe things, with her background and education, that you are unable to relay to her verbally.

I don't know. I DO know that you are so used to protecting your daughter from her condition that you can't stop.
Cigarguy101 · 41-45, M
@4meAndyou this is why I'm asking. I don't know. When she was little I couldn't take her out to eat because it was too much for her. Now she can go to a nlf football game. She is able to go to regular classes and perform with the orchestra at her school.

Yes she needs her sensory bag, yes she needs her iPods but she is there. But She's having fun. She's enjoying her self. She can go to comic Con, royals games. She was come so far. But am I doing this wrong.
4meAndyou · F
@Cigarguy101 In the end, you have to ask yourself questions like..."Do I trust this doctor?"

I mean, if a doctor you trust wants you to take an antibiotic, you do it, right?

If you refuse to cooperate with the doctor, then it's like you saying that YOU are the doctor, and that you know what is best for your daughter, and she doesn't.
Cigarguy101 · 41-45, M
@4meAndyou yes but we're not talking about taking a pill we're taking about causing her to have a major meltdown where I will have to meditate her after it happens and the last time that happened it took her days to get back to herself again. She's seen her 4 times. I've been dealing with this my whole life. I just don't understand why she needs to see her get this upset.
4meAndyou · F
@Cigarguy101 Maybe you should ask her point blank.
Cigarguy101 · 41-45, M
@4meAndyou thank you for the advice on this . I don't know if there is a clear answer.

I'm just not going to think about until our next appointment. I'm going to focus on our trip tomorrow. Got a long drive across Kansas lol
4meAndyou · F
@Cigarguy101 Yup! Stay calm while driving!
Cigarguy101 · 41-45, M
@4meAndyou the kids are good in the car and we have lots of stops planned along the way.
4meAndyou · F
@Cigarguy101 It will be wonderful. When you get home you will wow us all with tales of your adventures!
Cigarguy101 · 41-45, M
@4meAndyou lol I'll do my best