Sad
Only logged in members can reply and interact with the post.
Join SimilarWorlds for FREE »

Continue once a week?

My dad has been in a nursing home nearly two years. Laying in a bed, and only doing PT or moving a few times, in two YEARS. He's now beginning to get bed sores that are infected, on his back. He initially went in because he was around the clock care...he had a bulging disc in back that is so excruciating he can't walk.
But now with bed sores, he's doing worse. They really need to help him sit up more, but they say he declines. Even if someone declined, I think it should be a base line of care to offer in a few more days, and keep persistent that he does sit up occasionally. I'll be talking again, to someone there soon.

But my conflicted feelings are, while I feel horrible seeing him in more pain every week, yelling out, uncomfortable etc. ...it makes me sad that he did not care of my horrible pain being abused daily growing up. Then would LiE, and say " She abuses you? She loves you" after watching my mom hit me, grab me, etc and belittle me DAILY. A mom saying " I should kick your throat in", is Love?????? Oh ok.. gotcha😧 it makes me sad and mad he ignored my needs and pain for years. And I'm there for him, because I hate seeing suffering. But I did have to cut down days going this past winter. Sometimes it was mentally too much.
I love my dad, but those years of turning away from me, gaslighting, that HURTS. I would like to continue visiting once a week, but some have said I should go every other week. Would you continue the same?
This page is a permanent link to the reply below and its nested replies. See all post replies »
exchrist · 31-35
Do what you can. As far as i know standard procedure is to lift\sit up a patient at least daily. If the nursing home isnt doing that it IS negligence. If your dad is resisting them or telling them not to do idk but its supposed to be happening.
Coralmist · 41-45, F
@exchrist Yes ..he has declined occasionally to be moved because the pain is so high. But I believe they do not ask daily or even weekly. It's like, *oh he declined. * What once, a month ago?? You need to keep asking every other day, and at least two or three times a week he NEEDS to sit up 😧 I simply was asking about his treatment for the bed sores and they retorted that it wasn't due to them, why he had them. I never said it was, but, it is due to him not sitting up and no one consistently trying every week to make it occur.
Coralmist · 41-45, F
@exchrist And then they said they couldn't sit him up because he didn't meet the OT goal of like two minutes or more to sit up... It's like, then keep trying , right???? His health is declining because of immobility now.
exchrist · 31-35
@Coralmist yes that definitely negligence if he is able to they should be getting him up walk around at least every other day (prefferably daily) or transferred into a wheel chair; at the least.
Im in new york state. Those are the guidlines here. Bed sores hurt; but they wont go away unless they get him moving; if only minorly.
exchrist · 31-35
@Coralmist plus it hurts because of the bed sores, Obvously so what the hell; ya know?Are they short staffed? Maybe try to have him ask to sit up any time someone checks on him. Or as often as he can? Does he have a call button?
Coralmist · 41-45, F
@exchrist He doesn't advocate for himself ever. They really need to go in and even if he declined due to pain..his body will suffer if he lays month after month..which he does. He can't walk unfortunately or get out of bed, but we just need him to sit UP.