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“What’s schizophrenia and mental illness like for you, especially before you even knew?”

My answer: I live with this illness every day now (but with medication,) so when I think back it was fucking intense without medication to dampen all the emotions. I don’t know if you’ve ever seen the movie A Beautiful Mind, but they actually describe it pretty well. We’ve all had bouts of déjà vu, but this is more intense and wrapped in your fight or flight triggers. Everything feels super immediate, pressing somehow, and like you’re seeing something that you shouldn’t be seeing. Almost like when you’ve passed out and come to or maybe even first wake up from a dream and it’s all real life but out of order or context, things have this semi-real feel but you’re definitely not dreaming, so your mind is struggling to process this sort of jumbled real life with all the potentially real life threatening consequences and it’s dealing with all that data (sometimes hallucinated data,) as it comes in. For me, I now know the signs when an episode is coming on. Usually my mind starts feeling confused like I can’t quite make sense of everything and my timing on stuff is all off. Usually my skin starts to kind of tingle and become really oversensitive (probably from the endorphins currently surging through my system.) My adrenaline feels super high like I’m already involved with doing something really scary and very dangerous but I’m not actually doing anything. Now, I always live with this kind of background murmurs like a few people whispering (that’s just something I’ve had to learn to live with,) but they get louder during an episode and I’m able to make out things being said. It is a combination of external voices talking bad things about me and my own internalized paranoid subconscious voice telling me that people are out to get me. It’s like suddenly my subconscious has an actual voice to convince me that all the things I kinda fear but bury inside myself… are really true, and that people don’t even like me… that they hate me and wish I was dead. Once the full episode starts, I can’t trust my eyes anymore because things I actually see seem represented in a way that’s dangerous to me. A loved one’s smile becomes a sneer. A shadow behind me becomes that same loved one, trying to get behind me to do something bad. When they first started, I didn’t know what was going on. I thought my boyfriend (yes I was kinda trying to be Bi at one point,) was trying to kill me. Every sweet thing he did, took on a sinister context. The thing about my hallucinations is they are intense but sneaky. I’m not seeing aliens or Jesus or anything. I’m seeing things that are actually real but severely altered to fit my paranoia. It’s like your mind is forcing visual cues to make you think the worst of people.

[quote]I’ve heard you talking how you hate your medicine sometimes, does it even help? [/quote]

This gets complicated because medicine is a double edged sword. As much as I like not being a freak…. I hate feeling fuzzy from chemical alterations. I know you’re probably like… isn’t that what happens with the mental illness and endorphins… and it is, but it’s different. It’s mixed with my adrenaline and makes me hyper aware, physically. Everything is just… more. More bright, more intense, more emotional, more scary, more… more… more. I know I’ve told you that I hate chemicals (drinking and drugs,) but that’s not entirely true. I hate the artificial chemicals. I’ve always been an adrenaline addict. That’s why I get super emotional, why I put myself out there, why I used to perform on stage, why I was even an activist in school over a social justice issue that almost got me expelled, why I’m hyper sexual, and why I sometimes do really dumb and impulsive things. I’ve always been an adrenaline junky, it’s just how I’m wired. As much as I don’t want to be in hell, I also miss the rush of intensity that not being on my meds causes. And often the dampening of my emotions from my drugs makes me feel like I’m living life covered in plastic wrap and not really “feeling” things for real. It’s a complicated relationship that I’m not sure I can even accurately explain to anyone at all.
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Nessie, your insights about this mental illness is nothing short of amazing. The self-awareness itself demonstrates clearly you understand the thought processes and are aware of some of the triggers that might bring on an episode.

Ironically, I can empathize with many of the behaviors which manifested during my recent hospital stay. I don't know if it was from the massive blood loss or what. I had the visual hallucinations, heard the "voices" the heightened, hyper- awareness as you described. These episodes were more frightening than my physical condition.

The fact of your sheer self- awareness to me shows that you are capable of coping skills. I hope this doesn't all sound trite and superficial. You do indeed have a "Beautiful Mind" (Loved the movie) you should embrace your superior intelligence. Someone like you can help others who are having similar problems. I sincerely believe much of your ideations are actually kind of a gift if you can convince yourself you are NOT crazy but like so many creative and gifted people you are a rare, and special kind of human. I'm really fortunate to have known you, you have a beautiful flair for language and I hope you continue writing. Thank you so much for sharing what you have. I know this sounds silly but I came across a rather new psychological healing process on YouTube you may want to peruse. It's based on the psychological need for happiness and includes some simple suggestions you can use for self healing and helping others to heal themselves. My user name comes from this therapeutic process as "gratitude" is an important part of positive thinking. The more I'm aware of things I am grateful for the more things seem to manifest in my life to be grateful for. Sounds corny I know but it works for me.

I consider you a gift and hope you realize that many here feel the same way.
Love, Light~ Namaste 🥰
@Grateful4you That was beautiful, David. ty. You honor me with your words. I’m currently organizing my threads. I only have one category so far. It’s called about me. I think you’ll find the other 8 besides this one interesting too. Give me a read if you like. 🖤🤗
@DarkHeaven Wonderful! I will do that.
kentex35 · 100+, M
I did see the movie. It was intense. The mind is still frontier unexplored by most unexplainable for most. Even scientist are still exploring. I respect psychiatrists but sometimes psychologists not so much. I have found them to be arrogant at times especially when I'm sorta forced to deal with them.
Have you dealt with this your whole life? Is it something that gets more intense or progressive? Do you try different meds or combinations? Like for the max effect but least fuzzy feeling if that makes sense . You know a less intoxicated feeling or more clarity in thought. I imagine you to be off a very above average IQ. Probably genius level of real close. Although I don't/can't really know since I'm not sharing the same brain you describe a lot of detail and that you are very aware that this is over the heads of the average IQ like me and that's probably liberal thinking on my part but I do understand a little better. A lot better. I think. What you you ask of anyone to try to understand? A "if nothing else " sort of thing? Is there something you wish you could tell a stranger that could make you feel like they are not the bad guy or just something about it makes everyone the bad guy at times. Are those you feel closest to usually the ones that are first considered to have the sneer or seem to be plotting? I guess it would be since maybe strangers or those not in your realm of your world.
I know that you are real and I wish I could take a punch for you when things are most worrisome but I can't. I'd like to be one that doesn't alarm you at first sight. And forgive my ignorance but feel free to always be blunt because I'm hard headed and sometimes not as funny as I think. I am not religious but somewhat spiritual. I mean I have faith and believe In a life after death and that allows me to ask for help or comfort or guidance etc through prayer and thought it meditation. I believe all good people go to a higher level and that they could intervene or pay for me from that place. It also helps me deal with my very finite life that I'm still resenting at times. Life really is too short. And time never goes backwards but it seems to speed up more often to me.
Peace be with you. If you need someone to take it out on or bounce something off of I'll be around a while longer. I think I'll see eighty maybe eighty one. Mom's almost eighty nine. She raised us to not get sick and that is a different story. Anyway my friend as you know I tend to ramble but thank you for looking me enough to share. Anyway..you know.. Ok
kodiac · 22-25, M
Im glad you got kind responses, the way people are now you never know what kind of responses you might get. When i first came to sw i was able to talk openly about my childhood abuse. Now no way in hell I'm leaving myself open to the pedos or to the overzealous reporters . Talking about it now is a sure way to get labeled as the very kind of person that abused me. It seems like there are similarities between your description and how ptsd feels. Just remember you have a huge tool to use in your recovery and she loves you through the good and bad times.
@kodiac ty ‘lil bro. 🖤🤗
SunshineGirl · 36-40, F
Wow, well you made an amazing effort to explain. Well done and thank you for taking the time and trouble. I feel I can relate to some of what you say about your complicated relationship with medication x
@SunshineGirl ty. it’s not easy because I get this is totally foreign to some people. thank you for your kindness. 😊
SunshineGirl · 36-40, F
@DarkHeaven It's because it is totally foreign to some that it is so important and useful to share 🙂
Mindful · 56-60, F
Wow. What you are experiencing is beyond challenging and seems like a personal hell.

I hope you can document and publish your medical history to make a life long contribution to other that may be in your shoes. When I battle depression, it is illogical, I don’t hate others so it’s illogical to hate myself, but I do. And I don’t understand why being imperfect makes me so angry with myself. I am so flexible and forgiving of so many things (even with my own self) but if depression sets in, I’m just not logical… and it’s hard to fight. Again, I’m glad you are seeking help. Even if you choose to change it up, I hope you are as forgiving of yourself as you would be to another.

Thanks for giving me the chance to pray for you.
@Mindful just fight. find your hope, and fight. that’s all we can do. 🖤

https://similarworlds.com/thoughts/personal-feelings/4211240-I-got-convinced-by-a-friend-to-share-a-part-of-my
Phoenix · 36-40, M
I don't know that it helps but you can hold an intelligent conversation online for more than a few sentences which is more than I can say of others.
I am not pretending I read all of your post but if you need to talk, feel free to drop me a message.
Phoenix · 36-40, M
@DarkHeaven True, intelligence and emotional balance are not connected.
I hope whoever you get into a relationship with will see you for all you have too offer and provide you with everything you need.
@Phoenix I already live with her and we are engaged to be married. 🖤
@Phoenix

https://similarworlds.com/thoughts/personal-feelings/4240986-trigger-warning-We-all-have-insecurities-We-all
Flowerz · 36-40, F
I'm a sufferer of schizophrenia of some kind. I have had different diagnosises from different doctors. It's not an extreme case but my emotions are mostly flattened. I never cry anymore. It's so weird.

It was nice to read your explanation of how you suffer from the illness.
@Flowerz Schizophrenia has a whole broad spectrum, so yeah. Similarities but many differences too. It’s also often accompanied by other mental illnesses like BPD, depression, bi polar, manic states, Anxiety, PTSD, OCD, ADD and ADHD, panic disorders, and/or social anxieties.
@Flowerz so yeah, it’s very complicated.
MyNameIsHurl · 41-45, F
It runs in my family, so I know from an outside perspective only, thanks for sharing ❤️
MyNameIsHurl · 41-45, F
@DarkHeaven you are too and I hope you know it
@MyNameIsHurl I’m nothing.

https://similarworlds.com/thoughts/personal-feelings/1784223-The-Nothingness-Stupid-pathetic-damaged-and-dark
MyNameIsHurl · 41-45, F
@DarkHeaven to other people you are something very special, you have to change the way you see yourself, which isnt easy
Rokasu · 36-40, M
I'm sorry sis. I didn't know but I should have.

If you ever genuinely need to interact with me spontaneously, for any reason, let me know. I can give you my personal number or whatever.

I'm here for you even when I'm not.
@Rokasu even in the worst of it, still there’s hope. I just do what I can to survive. 🖤

https://similarworlds.com/thoughts/personal-feelings/4211240-I-got-convinced-by-a-friend-to-share-a-part-of-my
Rokasu · 36-40, M
@DarkHeaven I read it but honestly I don't necessarily need to see deeper into the tunnel. You're family already, the love is established.

Genuinely, if you ever need me don't hesitate to DM or whatever. I'll do what I can to be a goofy broski.

What I'm trying to say is, you're coming to my wedding if/when I ever have one. I'm also going to start inviting you to my family outings when we finally make that a thing. You're a part of me.
@Rokasu you’re a part of me too. 🖤 Now quit making me gushy, stupid head.
I love how honest you are about dealing with this. I have never felt this but I have some family that deal with mental health and I used to judge them but Now that I’ve matured, I want to understand so I can be there for them.
@SweetNSassy it’s pretty scary for many of us. Support is so important. 🖤🤗
Classified · M
You managed to write it down after all. 😊

It sounds really intense and difficult to deal with. It's good that some people know you and know how to work with it.
@Classified I sort of cheated. This was a semi-modified cut and paste from a conversation I had with a friend. When I was reading it, I realized it already said what I was trying to share here. 🦋
Classified · M
@DarkHeaven That's simply smart then 😄
ArminArlert · 22-25, M
You are very intelligent and seem to know quite a bit about your condition. That's amazing, and the best start. Thank you for sharing this with me.
@ArminArlert yw. best of luck. be safe and be well. I’m wishing the best for you both.
DDaverde · 56-60, M
I can’t imagine your troubles but I suffer from PTSD and severe depression.
It’s no bargain my true feelings are partly
Hidden by the psychotropic drugs
My wife told me I am not the same person anymore .I’m angry now and distant from her I am probably going into the hospital
Next week as my counselor is worried about
Me I’ll seehow the bad thoughts go……
Hang in there you are loved by people in your life ( I worry about you too!)
And I pray for you (if you don’t mind )
Hang on tight the rides not over yet….haha
@DDaverde I don’t mind. And I will say a prayer for you too. Be safe & be well. Good luck to you and your family that supports you.
I didn't realize you had schizophrenia.
@Spoiledbrat I kind of wondered. I never assume, but things you said. Please know that you are special and beautiful and your mind is a gift. I appreciate you, my friend. And am grateful that I’ve met you.
You're kind. @DarkHeaven
@Spoiledbrat only to those that deserve it. 🖤🤗
Justmeraeagain · 56-60, F
Like a scary kelidiscope on a ferris wheel?
@Justmeraeagain it’s intense. I just try to do the best I can.
Justmeraeagain · 56-60, F
@DarkHeaven must be tough, but I do believe that all of us ,if honest, can say we just try to do the best we can
Phoenix · 36-40, M
Thank you for the trigger warning... @DarkHeaven
Phoenix · 36-40, M
@DarkHeaven I'llrry to remember it when my turn comes. We can't take mental health for granted, it only goes downhill from here.
@Phoenix I talk about it all. My struggles add compassion, and my successes give hope. All is important.
Phoenix · 36-40, M
@DarkHeaven Finding and keeping a relationship with a soulmate is pretty high on my list of achievements.
That is for passing the hope on
Insightful thank you for sharing my heart goes out to you I can only imagine.
@userfawkes1105 ty but not all of my story has been heartbreak. there’s been inspiration too. be safe and be well.

https://similarworlds.com/thoughts/personal-feelings/4211240-I-got-convinced-by-a-friend-to-share-a-part-of-my
basilfawlty89 · 31-35, M
I think really the only movie to get my disorder (OCD) right is a British movie called "Dirty Filthy Love".
It really shows how bad it can get, just how effective therapy and a support network are, and what it feels like to dread constantly.
@basilfawlty89 I understand. I suffer some OCD among other things too. Mine is more minor than yours probably, though… and definitely takes a back seat to my schizophrenia.
@basilfawlty89 be safe and be well.
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