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So since I was last here in SW, I got a new MRI

Proof that my incurable and untreatable illness has progressed.

What do you all think about euthanasia in my circumstance?
Alfarrobas · 31-35, M
It's up to you. It's your life, you need to think about it. Check with some medics what are the real options. Check with family and close friends.
But in the end, it's your life and your choice.
@FlowersNButterflies The laws are so crazy and they are going to get far worse if the Republicans get anymore power than they already have.
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FlowersNButterflies · 61-69, F
@Pitchblue I absolutely agree. But I am NOT above ignoring the laws if they cause me harm. I am not a "good person" in that way. Republicans are among the reason I am glad I am old and sick. And leaving the world soon. I don't want to live in a republican society. I believe they are evil and corrupt, and offer nothing good to the world.
That's entirely your choice.

Do you have a list of things you'd like to do or experiences you'd like to have before you die? If so, which ones are achievable?

Do you have any regrets? Do you need to make any amends?

Do you need to talk with someone about your feelings?

Are there people to whom you need to express your appreciation and love?

Do you have an up-to-date Will and are all your affairs in order?

Will the end be painful? Are there effective drugs that can remove that particular kind of pain?

Some ways of dying involve very slow deterioration, fully aware of it, or slowly losing all awareness.

Some of these things are worth discussing with your doctor and a psychologist.

You'll probably need to write an Advanced Health Directive which tells doctors and others what your wishes are when you can no longer speak for yourself. It's legally binding and means your spouse or family don't have to make difficult decisions on your behalf (such as when to switch off life support).

If you decide on euthanasia, EXIT is an international organisation which can tell you how to do it. Sometimes just having the means is such a comfort that people choose to live out their natural span.
FlowersNButterflies · 61-69, F
@hartfire You are a thinker, and that is good. I have been a member of Exit International for years.

I have taken those actions years ago. I am well documented, not that I think it will matter.
melbeacher · 56-60, M
I think it comes down to quality of life. When to say when.
FlowersNButterflies · 61-69, F
@melbeacher And hope we make the right choice before a sudden exacerbation takes the choice away…
Notsimilar · 31-35, F
What is your quality of life? Are you in constant pain? Is it unbearable? Even mentally? Those are things I'd base such a decision on. If it's all bad and you're miserable and it's only getting worse, I think it's a reasonable decision. But don't make the decision suddenly, think about for some time, and know that it's okay to change your mind at the last second. Good luck to you. I hope you are doing okay all things considered.
FlowersNButterflies · 61-69, F
@Notsimilar Much mental anguish, know the risks and the lack of good future.
Notsimilar · 31-35, F
@FlowersNButterflies [b]hugs[/b] 🌻💐
FlowersNButterflies · 61-69, F
@Notsimilar Thank you. I adore kindness!
BackyardShaman · 61-69, M
I am so sorry, and I didn’t answer your question so now I will. I think that when someone is in the last days and there is nothing that can be done, it should be offered as an option.
FlowersNButterflies · 61-69, F
@BackyardShaman Yes! But the crazies call that murder. It isn't. It is compassion and kindness, like what we do for our animals, but society doesn't do for us.

But "last days" is the kink in your position, no offense intended.
BackyardShaman · 61-69, M
Maybe a better description than last days is on hospice, unable to eat walk or think, in serious pain all the time and on heavy pain meds.@FlowersNButterflies
FlowersNButterflies · 61-69, F
@BackyardShaman Does not work that way in dementia. No doctor can affirm an expected time of death. In my illness, we can survive miserably for years in a most horrifying state of existence without hope.

Something like cancer is more easily understood - a cancer patient exhausts all possible treatments, and then the doctors know the person will die soon, as the disease is so documented. Then they are willing to help a person die.
Penny · 46-50, F
i dont know about you but i want to live as long as i can. (of course i want to be happy for it though) within your limitations, what would make you happy?
FlowersNButterflies · 61-69, F
@Penny To be off the planet. My condition often gives us sudden death from heart rhythm disorder and while I have the documented heart condition that is common in this illness, no guarantees.

There really are things much worse than death.

I have lost friends younger than I; diabetic complications at 56, breast cancer at 54, heart attack at 60. Having outlived them, I can't whine about dying in my 60's.
Penny · 46-50, F
@FlowersNButterflies well, in this day and age, space travel is possible. i don thow much it costs though lol
FlowersNButterflies · 61-69, F
@Penny I know you are only joking, but to me as a multidimensional reincarnationist, it is not about two externals, but rather about an external and an internal. The soul versus the body… one is temporary and the other is an eternal expansion of existence.
Not to make light of your situation, I have Chronic Pain but the Republicans may have just taken your rights in this regard away. Even a DNR might not be legal anymore because a nurse is a pro lifer.
FlowersNButterflies · 61-69, F
@Pitchblue Republicans are brutal, uncaring. I agree with you. I see no reason to stick around for my money to enrich a corporation, it is a factor. People in my situation facing what we are are forced to sacrifice some of our life span just to be able to have the mental capacity to prevent much suffering.
SW-User
I disagree with euthanasia because the ending of ones life should not be medically facilitated. And I genuinely don't understand why anyone would want to go through the process of getting a doctor to kill them when they can actually do it themselves.
FlowersNButterflies · 61-69, F
@SW-User Speculation. Doctors come to your home through hospice, or you go to Dignitas in Switzerland (very expensive and most can't afford it).

Additionally, I think it is wrong to traumatize others with your passing.

https://afsp.org/suicide-statistics/
SW-User
@FlowersNButterflies Wouldn't it be better to spend that money on something else? What about family?

Either way people who care will be traumatized. If it was explained to them I'm sure they'd understand.
FlowersNButterflies · 61-69, F
@SW-User No, it is okay to spend money on oneself, especially at the end of life. People who can say good-bye are less traumatized than those who experience a sudden ripping away. And people who love you don't want you to suffer, and don't demand that you do things as they think they would do them were they in your situation.

My disease no profit organization is my beneficiary and I trust them to spend the money to help others with my illness.
Barny52 · 56-60, M
lets just say if it was me ,,i would want to be away from this world .So sorry x
FlowersNButterflies · 61-69, F
@Barny52 I do, too. Death is natural, yet so many fear it! But I would prefer my body make the decision for me!
smileylovesgaming · 31-35, F
Well make sure u do everything u want
FlowersNButterflies · 61-69, F
@smileylovesgaming That made me giggle! People die without clearing their bucket lists, every day!
Really · 80-89, M
@FlowersNButterflies I'm glad you had a giggle. You sound very honest and courageous. I hope your husband won't mind my saying I love you. I wish you the best possible life quality and the most desirable, peaceful end.

When people speak of bucket lists I always hear Nana Mouskouri singing the line "[i]and not be defeated by yesterday's dreams.[/i]" I've had to apply that advice to many of my own dreams, and it's strangely comforting. Here's something I already quoted elsewhere but I'll repeat; perhaps you'll like it:

[i]"[c=800000]In our later years, we pull in the outposts.

At ten, fantasy drives an exploring module around the moon; at twenty the Trans-Siberian Railway or hunkering down to help natives in Mindanao; at thirty a year off in Tuscany or Tahiti. We station a couple of scouts at the perimeter of the empire - geographical and also intellectual. We shall take music lessons, learn Spanish dance, paint on a houseboat, read Proust, Gibson and Cervantes, open a restaurant, write a movie script or a detective novel, study Chinese, play the commodities markets. We begin to send a few more troops to these outposts, visit them, dwell there. We gather clippings, keep notes and addresses, mark possible future dates in the calendar. Then, as years pass, we begin to call the troops home one by one. With lingering nostalgia we abandon them to the sands and the wind. traceless fantasies. Some vanish without yearnings, more likely with amazement that they once seemed viable parts of the empire. Pulling in the outposts is simply calling home the possibilities and dropping in to where you are, your place.[/c][/i]"
smileylovesgaming · 31-35, F
@FlowersNButterflies if I knew I would die in a few years I would sell my house and travel the world till I die.
SW-User
I'm sorry to hear you are even having to consider this. ((hugs)) Euthanasia was just made legal in the state in which I live. It should be legal everywhere; people should have the right to avoid a miserable demise in this day and age.
FlowersNButterflies · 61-69, F
@SW-User It can be legal and still not allowed. The catch is that a person requesting euthanasia needs a medical source to agree the person is within the last 6 or 12 months of a natural death - and that weird standard doesn't work with dementia.
samueltyler2 · 80-89, M
I don't think SW is a very good place to discuss this. Speak to your physician, religious leader, family and friends.
FlowersNButterflies · 61-69, F
@samueltyler2 NOT what I asked.
FlowersNButterflies · 61-69, F
@samueltyler2 I am ordained in metaphysics, giggle about it, think religion is evil, have a documented high IQ in an average thinker world. I do ask others their opinion, for multiple reasons. I seek comfort.
Jackaloftheazuresand · 26-30, M
I believe in the right for anyone to take their life at any time
FlowersNButterflies · 61-69, F
@Jackaloftheazuresand I do too, but the actual act gives me creeps. It is genetic, and one of my cousins with it did leave the planet. Sad that we can't get physician assistance. People on death row can. I think we can't, due to religionists and their whacky theories. Running society, and badly, too.
Jackaloftheazuresand · 26-30, M
@FlowersNButterflies Why is it creepy to you?
Wow...how horrible.

I'll look into your posts...
What ails you?
FlowersNButterflies · 61-69, F
@Spoiledbrat Diagnosis is not the issue, but it is https://healthjade.net/cadasil/
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