I've been diagnosed with Lupus Nephritis 3 months ago... And this week my condition flares up again. Does anyone understand this illness better?

Sometimes I feel like nobody understands this chronic auto-immune disease - as it's not very common we meet people who are suffering from SLE.

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OverTheHill · 61-69, M Best Comment

My wife has Lupus. She sees a Rheumatologist 2-3 times a year. She is on some meds that help with the pain. I hope your treatment is helping you.

Tinkerxbell · 46-50, F

@OverTheHill Thank you for sharing your story. I hope your wife is doing well.

likesnatural · 70-79, M

I don't know about your variety of Lupus, but most are devastating. I had a childhood friend that got it as a teenager. She couldn't be in the sun and had to have an umbrella to be outside. I hope you do have some good days.

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Tinkerxbell · 46-50, F

@smileylovesgaming FYI UV light can trigger a lupus flare. That’s why we need to stay away from the sun.😩

likesnatural · 70-79, M

@Tinkerxbell I hope your treatment plan works and you can be healthy enough to,do normal things at least.

Tinkerxbell · 46-50, F

@likesnatural Thanks so much for your kind words. xo

WillaKissing · 56-60, M

I know nothing of it and God Bless you is all I can say my lady.

Tinkerxbell · 46-50, F

@WillaKissing Thanks so much. Your kind thoughts and prayers mean a lot to me.

WillaKissing · 56-60, M

@Tinkerxbell They are true, and heart felt, bless you!💜

Tinkerxbell · 46-50, F

@WillaKissing Thank you. xo

smileylovesgaming · 31-35, F

Maybe u should talk to a doctor about this

Tinkerxbell · 46-50, F

@smileylovesgaming I did, thank you. And, all they could say is just have to wait and see if my treatment plan works. It just feels like a waiting game sometimes.

Bleak · 36-40, F

Autoimmune diseases are so tough to manage.

MoonaNorth86 · 36-40, F

Isn’t lupus from the Simpsons or is it a real disease

Tinkerxbell · 46-50, F

@MoonaNorth86 it’s a real. It’s an autoimmune disease.

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