Hi, this is raregem. I came back on here to update my friends on here and also for encouragement.
My hubby and I celebrated 26 years together this past April. He is my strength, my protector, my love and my best friend.
Recently he and I got an offer from our boss to take on more responsibility and with it came added stress, challenges and yes, money. Because life was getting out of hand for me I felt like I needed more distraction (to keep me on the straight and narrow and out of trouble!)
Before we dive into the new work load I asked my husband to please go to the doctor's. He's had discomfort in his gut for a month and kept putting off going because we don't have health insurance.
Well, he finally did. He used to get infections that could be cured w/ a couple of antibiotics so that's what we were thinking this was. They drew blood and it came back that his white blood cell count was rather high. They ordered an ultrasound and that revealed his enlarged spleen and liver.
After several tests the prognosis is Stage 4 Mantle Cell Lymphoma. :'( Our hearts sunk and I tried hard not to lose it right there. No no no no.... not my best friend.
Treatment had to come quick and aggressively. He was in the hospital for 7 days getting 12 chemo treatments.
They even let me spend the night there with him.
[image deleted] Here I am in a gown the nurses got me to be cute.... and I bought my hubby some fake mustaches for when he lost his.
While he was getting his treatments I worked to keep everything afloat at the complex we ran. Still doing my office work I did some mowing too.
[image deleted] While he was away I went into super wife mode: Cleaning the house from top to bottom! When He came home I had to learn to flush his pic line and give him his meds. (there were 8 prescriptions!)
I surprised myself with all I was able to accomplish, even while crying inside.
I even cooked him some great meals!
This one is Wiener schnitzel! I learned to cook it! And I made chicken and roasts and plenty of sandwiches! I wanted him proud of me and he was and he is still.
He's back at the hospital. He will be there for several days getting more treatments. So I'll be at his side, I'll hold the fort down here at work and I'll be there for him when he comes home.
I love my husband. I'm believing he will come through this. I'm no where near ready to lose him!
I love you my Sir Daddy!!!!
Love,
Your babygirl
This page is a permanent link to the reply below and its nested replies. See all post replies »
@samueltyler2 We don't have any. Our work even tried to set us up some that they'd pay for.... But the Obamacare is still in effect and screwed that all up. So now we're trying to get him on disability.
@realrare I don't know why ACA would screw it up, there are places to call to get help. Call the local cancer care people. Where are you? I am a big donor, I can tryntonfind someone to call, no promise, but.
@samueltyler2 It wasn't a screw up, it was the policies that messed it up. Literally my boss had authority to pay them $12,000. to get us insurance and because of three issues they couldn't do it. 1. They claimed the business didn't have an owner even though she showed it did. 2. My husband and I are married and they had issue with that! 3. It isn't a quote ''enrollment'' period, so they had issue with that. My boss was in tears because she loves me and my husband and wanted to do this for us and make it an added benefit. Right now we are trying to get a Medicaid Advantage Waiver and also trying to get him on SSA disability.
@realrare Medicaid is available through the ACA, depending upon income. Some states refused to participate though. At least ACA insurance can notbrefuse based on prior illness.
