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I Have Epilepsy

Well tomorrow Should be an interesting day as we get to drive back up to Stanford University/hospital to discuss the next move and whether or not to do surgery, and if so, what kind. I am thinking I'd rather have a removable chip implanted than laserly remove something that can't be put back. And I certainly don't want to lose any more of my memory that I already have. Definitely can't expect to put that back.

Nerves are within, along with subdued excitement not knowing just what to expect. Here I go again.
silentwriter180 · 51-55, F
Keppra worked well for me for. 5 years until the pharmacy decided to switch me over to a generic form of it, so watch out for that. I am now taking Vimpat and Lamotrigine together. The combo has worked the best for me.

Unfortunately everyone is different in what works for who. I wish I could advise you as to what works best, but I can't. I've been through all kinds of testing and I'm sure you have as well. If you take an EEG be sure it's not just for an hour or so. That was my problem. I didn't have a seizure during. This last test lasted 4 days as they waited. Until the seizure happened. That showed them a lot. I wish you the best!!
nacnud · 31-35, M
Thank you for taking the time to reply. Meds wise I'm now on kepra and lamotrigene but I know it's The case of finding The right cocktail to take. (The kepra was added after seizures I had a couple of years back put me in resus just in case following a few grand mals in the space of an hour)

Seizure wise I'm now on my 6th absence type one this year 😣 but not had a grand mal in 2 years since meds were changed ☺

If it helps on memory I found it really helpful being given a literal memory box by my wife where things from trips e.g. rail tickets, a pass from a place visited could be kept. Looking back over them later helped me to remember things I'd forgotten.

Hope things go ok at the appointment and likewise all the best.
nacnud · 31-35, M
Hope the discussions go well with the consultant. Memory loss is something I really hate as a side effect of seizures.

I have to go back to look at an alternative medication to what I'm on. (Kepra) The current meds stop the scary seizures but instead now have lots of absence types and anxiety...
Peaches · F
I sure hope things are going well for you now my lovely friend. 🤗🍀🌺
silentwriter180 · 51-55, F
@Peaches Thanks, honey. Yes things are going well. I go back up on the 13th of December to meet with someone new....a neurosurgeon to discuss the actual surgery. Then, I believe, the big day is next.
Peaches · F
@silentwriter180 It's gonna all work out, 🤗🙏🏼🌟keep the faith!

 
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