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irishmolly72 · 56-60, F
Does she have an actual diagnosis? Is it numbness and pain or just numbness? Has she had genetic testing? It can be expensive but it could uncover something, perhaps inherited.
She might want to reach out to the Rare Diseases Network if she has seen a neurologist for a while and she's still not diagnosed.
https://www.rarediseasesnetwork.org/
Or she can try the Inherited Neuropathy Consortium.
https://inc.rarediseasesnetwork.org/
Physical therapy can help her to function optimally in her condition if it can't be improved. Good luck to her!
She might want to reach out to the Rare Diseases Network if she has seen a neurologist for a while and she's still not diagnosed.
https://www.rarediseasesnetwork.org/
Or she can try the Inherited Neuropathy Consortium.
https://inc.rarediseasesnetwork.org/
Physical therapy can help her to function optimally in her condition if it can't be improved. Good luck to her!
Coralmist · 41-45, F
@irishmolly72 She's been diagnosed with peripheral neuropathy yes. It's both painful and very numb. She said the numbness is awful. It never stops. I feel so helpless. We will look again into the Rare diseases network. Ty so much 🌼



