In recent years, I have developed maturity onset Grand mal Seizures these are terrifying
I hope none of you ever become a victim to this kind of horror.
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I've had tonic clonic seizures - gran mal for most of my life from a head injury . Believe me i understand how terrifying they can be .Usually i have a couple of minutes warning before it's full blown my best advice is try to identify any triggers and if you feel one coming lie down.in an open area. The times i been physically hurt is from falling or banging into stuff or biting my tongue. What meds are you on ? I'm on tegretol it seems to be better than phenobarb and Dilantin . It's so scary when your brain.is in total rebellion.
Grateful4you · M
@kodiac Thank you for the very valuable suggestions. I've currently been on Metoprolo 10 mg. OD while the sz. activity has diminished fairly well, this mornings episodes (A series of 3) was the worst I've had this year. I was both screaming and talking to myself, I had visual hallucinations. While this could have triggered the Sz.activity in many people I tested negative for any benzo chemical in my backpack of prescribed meds. Too bad Xanax has such a negative reputation, that's when I was the
mod comfortable. Let's just go to Turkey and drink tea all day long.
I have heard of tegretol but never thought of it nor has he mentioned it. The real pay off is that before the seizures started I was plagued by an anxiety/panic disorder. As you are well aware, once you are on an over two week regimen of the Benzo's you become benzo tolerant
mod comfortable. Let's just go to Turkey and drink tea all day long.
I have heard of tegretol but never thought of it nor has he mentioned it. The real pay off is that before the seizures started I was plagued by an anxiety/panic disorder. As you are well aware, once you are on an over two week regimen of the Benzo's you become benzo tolerant
kodiac · 22-25, M
@Grateful4you For me since it's been happening for so long i have learned that the anxiety / panic attacks go hand in hand with my seizures. For me it starts with just feeling a little off ,knowing something just isn't quite right . My reaction is oh no not another one and the fear starts building slowly that fear turns into panic like oh god not again. If i could find a way to short circuit that cycle try to be grounded stop the panic. I think i might be able to stop the seizure. In my case i don't get visual effects ,i do get uncontrolled like grunts or blowing . I get metalic taste ,extreme temp rise the worst is the audio effects . Everything thing echos, if someone says hey i hear it over and over and each time it gets louder until it's so loud i just black out and go into the seizure. I'm sure they told you to avoid strobing lights ,extreme loud noises like sirens . It sucks for me because i can't get a drivers license Unless i can prove seizure free for at least a year