Regarding head trauma.

@Unlearn Yes, the brain is a very sensitive organ. I have to be careful myself as I am seizure prone myself, this just manifested this past year. Tonic/Clonic type aka "Grand Mal. they are absolutely terrifying I assure you.

@Grateful4you Seizures are so scary, i had a head injury 14 years ago still have tonic clonic tegretol helps but hasn't stopped them completely.

@kodiac I take Keppra 2Xdaily, while mostly seizure free there has been a few short events. Losing control completely is horrible. I become totally dependent on my partner and twice, kind of became physically aggressive which is the worst part. I have no idea why this became a maturity onset medical problem.

@Grateful4you I started on phenobarb and Dilantin but it made me like a zombie. When i as little i got hurt a lot times from falling or banging into stuff till i learned to get down i usually have few seconds warning when it hits. My best description is it's like how an engine has a firing order like 12345 and everything works fine. During a seizure the brains firing order goes crazy instead of 12345 it's like 15243.

@Grateful4you The triggers can make things hard ,if I'm anywhere near a siren like a firetruck going by it can trigger one . For me i think i get so scared when i even feel a little off that i start to think oh no here it comes and that feeling keeps building until it actually triggers the seizure .They tell me it's not epilepsy and could possibly go away some day. It sucks because i can't get a driver license.

@kodiac "Oh no, here it comes" Do I I ever relate to those exact words. So far, I haven't been able to target any exact triggers which would be an asset, When I get the feeling of "Oh no" I run to the bed where I'm less prone to self-injury or aggression toward others, (I'm sure you know the aggression is never purposeful, haven't a clue as to why.Like you, I really would like to drive again. I hope so. I haven't been formally diagnosed either. I guess we just got unlucky with the medical lottery. Next time I prefer to pull the money numbers. I hope this someday soon will resolve for both of us bud.

@Grateful4you Biting my tongue is the worst!! For me its loud sustained noise flashing lights being extremely tired . But sometimes it just comes out of no where.As a kid it happened more and in places like school so i became a target for bullies . I hope we both can see a time when the oh no never happens.

@kodiac Since mine is maturity- onset I never had to deal with the bully factor. Not only have you had to endure the physical pain but emotional as well, this indeed has made you stronger probably much more than even you realize since it has evolved over decades. While this has been an emot ional and physical drain. You have the capability to offer support and suggest coping mechanisms so in a way this "sickness" has been a learning and self-help experience valuable to others. Although a somewhat dubious gift, it is a rare and valuable one. If I had your expertise I would love to apply this to classes helping others. I would incorporate a lot of humor, making it a fun yet informative class.

BTW, Licensed nurses are required (in most areas) "Continuing Education Units" otherwise known as "C.E.U.'s. You can find out what you need to qualify as a instructor on the subject, "Living and learning to cope with chronic Tonic/Clonic seizures. Or something similar. I was reluctant at first to try and teach but to my happy surprise discovered I not only was able to address a class but was actually good at it. A professor once advised me, "If you really want to learn your subject, TEACH IT! " He was right. This is something you may want to consider, doubtful at first, you might surprize yourself. Teaching nurses was not only fun, but lucrative as well especially if willing to travel, hospitals hate losing nurses for long periods and usually willing to pay extra for you to teach a dozen or so in-house.

@Grateful4you I never thought about my experience being able to help someone. I would really like to find a way to work with kids to help them not be so scared. It's so frightening when you're a kid. One thing i learned is for me a seizure is a cycle,it starts with the oh no then keeps building up through my legs then i get metal taste , if a person can break the cycle of panic It's possible to stop the seizure. Now when the oh no hits i try to stay calm instead of panic it has worked once or twice.

@kodiac Somehow, I just feel like doing some kind of instruction/teaching work would be a good fit for you. Having had so much time in management and marketing etc. I've been around folks doing a speaker/imstructor you just kind of have that vibe. Maybe doing a kid thing might work well for you. I think even just some hours might be worthwhile. If I were you I would at least give it a little energy. It's going to be quiet awhile on this side since I need a shower. Probably be back. Later bud.

@Grateful4you Thanks for the advice and encouragement!