I Have Epilepsy
So I have absence seizures..temporal lobe epilepsy...And I only recently read stories from others describing the aura (warning) before an absence. When they described it as, butterfly sensations, impending doom feeling, deja vu feeling, overwhelming anxious feeling etc.
I totally agree!, and as difficult as it was to explain to people. Then they would say "But there's nothing to worry about?".."Nothings going to happen!"...They don't realise that the feeling pre-absence is just triggered as part of epilepsy. Perhaps made worse by the thought you could potentially have a full seizure.
But I was trying something recently. If the build up is mixed feelings, and the overwhelming nerves intensifying until you zone out?. What if I try distracting myself not by just thinking about things (it never works, it can only intensifying a seizure)...but instead by creating a sharp feeling so my mind turns to the physical, its like it neglects everything else, the strange anxious feeling from the aura goes numb...my mind picking up me scratching the back of my hand or arm or pinching my skin.. I generally do this now whenever I feel the aura...That has worked for me since I tried it. I hope it continues.
I totally agree!, and as difficult as it was to explain to people. Then they would say "But there's nothing to worry about?".."Nothings going to happen!"...They don't realise that the feeling pre-absence is just triggered as part of epilepsy. Perhaps made worse by the thought you could potentially have a full seizure.
But I was trying something recently. If the build up is mixed feelings, and the overwhelming nerves intensifying until you zone out?. What if I try distracting myself not by just thinking about things (it never works, it can only intensifying a seizure)...but instead by creating a sharp feeling so my mind turns to the physical, its like it neglects everything else, the strange anxious feeling from the aura goes numb...my mind picking up me scratching the back of my hand or arm or pinching my skin.. I generally do this now whenever I feel the aura...That has worked for me since I tried it. I hope it continues.
31-35, T
