SMA Awareness August is SMA Awareness month. SMA is the disease that I have. Right now there is no cure, but I'm always hopeful (1)
Enjoying the water The pool can be a challenge to someone who is disabled, but today i was able to enjoy it. (1)
Finally some great sleepAfter a stressful day yesterday was able to sleep like a baby. Yesterday was trach change day and is always stressful for me. I've been having a tracheostomy since I was 12 and whenever it needs to be changed it stresses me out. After so many years... See More »
WheelchairAs someone asked in my intro, if I'm in a wheelchair...yes I am. Been in a wheelchair most of my life. I have an illness called Spinal Muscular Atrophy (SMA). It's an illness that causes deterioration of the muscles. It can affect breathing in some... See More »
New to similar worldsI'm Maylan from Florida and new here. I don't know what I'm getting myself into, but I guess that I'll soon find out.
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