Only logged in members can reply and interact with the post.
Join SimilarWorlds for FREE »

Anyone know how to receive assistance with assisted living and/or hospice in Massachusetts?

A good friend of mine is a Veteran, and is eligible for paid assisted living and rides to and from treatments for stage 3B lung cancer only if he lives farther than 50 miles away from the VA assisted living in Jamaica Plain, Boston, and he lives 36 miles away. He is presently receiving rides from the American Cancer Foundation volunteers.

He says he feels so awful already he can't deal with a 72 mile commute every single day, and he says even if he could, he can't stay alone at his own home.

He says he would refuse to stay at Jamaica Plain anyway, because the place is like a barracks and stinks of cigarette smoke.

He is no longer in treatment at the VA because of a malpractice issue, and is receiving treatment at Dana Farber in Boston.

He is confused, and is giving me conflicting information. He told me that if he received treatments 5 consecutive days, the American Cancer Foundation would put him up at a hotel and pay for it, so it sounded like he was all set.

Tonight he told me that he misheard the message on his answering machine, and they will NOT have a room for him in Boston, because there is a waiting list.

The nurse at Dana Farber told him that even if they did have a room, he would be so sick from the treatments he would not be able to stay there alone, and that he is going to need specialized care.

I am going to be doing some research on this tomorrow, and I will try to make some phone calls for him, but I would appreciate any recommendations about who to call.

In addition to his veterans benefits, he has Medicare and Blue Cross Blue Shield as a supplemental insurance.
Top | New | Old
4meAndyou · F
All of you good and great souls who answered here have a part in what has happened... I know you do. Have you ever been humbled and shaken to know that God has heard all of your prayers?
He has heard.

I loved that moment in the movie Avatar when all the animals on Avatar suddenly join in the fight and the wife of the hero Jake Sully suddenly shouts, "Aiwah has heard you!!!!!!!!" That is how I feel. Jubilant and tearful.

That moment of joy shakes you to your core, somehow.

Everything is happening all at once, taking me from despair, where nothing was going right, to this realization of two months of prayer and work.

A lawyer is finally looking at my friends case. He arrived this morning and took my friends medical records. I arranged that for him through a reporter at the Boston Globe.

If the lawyer comes back and says the VA is at fault for medical malpractice, the Boston Globe reporter will write my friend's story, and it will become his memorial.

My friend was supposed to be kicked out of Spaulding Rehab on Thursday, tomorrow, because he was too weak from the chemo to perform PT and OT, and PT and OT improvement is a requirement to stay there. He had no place to go.

I called my former church and asked them for help with rides for my friend to and from chemo and radiation, and no one ever called him and no one has ever called me to let me know that no volunteers could be found.

The American Cancer society ran out of ride benefits, and there is a waiting list for hotel rooms near the hospitals in Boston.

I tried so hard to find him a place to stay where he could receive care, and I did get him in to Spaulding...till now.

But today...TODAY!!!!!!!

The social worker to whom I spoke two months ago came through for him. He has another bed in another rehab after he is forced to leave this one. She mentioned my name to my friend, and said she remembers speaking to me, and has been working ALL this time.

The lawyer showed up. He will look at the records. No promises, but he is not asking for any money, yet, either.

He found out from the same social worker that the VA is finally finally finally coming through for him with rides. He will be taken by ambulance to and from the chemo and and radiation treatments and the VA will PAY for all of it!!!!

Thank you...because it was you...all of you who added your voices in a song of prayer to God...a song of such beauty that He has heard you!!!!!
@4meAndyou Good at least some stress is off you guys and now he can get the treatments without the hassle.
4meAndyou · F
@MarmeeMarch I am so grateful that you sent me help when I needed it most.
Roadsterrider · 56-60, M
My wife is a nurse in a retirement home, she sets up hospice for patients. Generally if a patient has less than six months to live, they will send them home with hospice, I would recommend talking to a home health provider, they know how to deal with the insurance and government bureaucracy. The really sad part is that the rest of the changes from ACA go into effect 1 Oct and benefits for the elderly have been reduced tremendously. Wife just had to spend a week in class learning the new changes to the system that will begin next month.
4meAndyou · F
THANK YOU SO MUCH!!! To all of you who responded here with ideas and suggestions. Through many phone calls today, I discovered that if my friends doctor at Dana Farber recommends it, he can be sent right to a skilled nursing facility and it will be completely covered by his insurances.

Unfortunately, he had to call the Emergency room this afternoon. The American Cancer society purchased an Uber ride for him, and as of 11:30 tonight he is in a room at the hospital. His good lung, the one without the tumor, has completely collapsed and is beginning to fill with fluid.

Regardless of his condition, at least he does not have to suffer alone without nursing care, and he will have someone to cook special foods for him that he can keep down. He will be monitored and he will be cared for.

Thank you all, again.
Carla · 61-69, F
@4meAndyou I'm pleased that he is comfortable and not alone.
As I said before, you are a good friend.
Peace
4meAndyou · F
@Carla ☮️💙
Carla · 61-69, F
@4meAndyou 💚
Carla · 61-69, F
Hospice will get involved if he has six months or less, estimated. I think you can contact them through your local hospital. They will come and evaluate him. If they take his case, life prolonging meds and procedures will be withdrawn. They will cover all meds that keep him comfortable.
My mom has hospice and the crew that has her case are wonderful.
Carla · 61-69, F
@4meAndyou there are long waits for assisted living in my area. The best way to get him in one and have it covered by insurance is to have him admitted to a hospital for, I think, three nights. Then his coverage will step in. A social worker would be your best avenue for the correct info.
4meAndyou · F
@Carla Thank you. MUCH appreciated.
Carla · 61-69, F
@4meAndyou my pleasure
curiosi · 61-69, F
Anywhere in the country if you dial 211, it connects you to the "United Way" organization. They are an umbrella for social services. They can give you a list of places that can help.
4meAndyou · F
@curiosi Awesome! You rock!
Scubaguy027 · 46-50, M
With him being a Veteran connect the VFW and American Legion in the area. I can't say for the VFW post there but with my Post, even if we can't directly help we can point someone in the right direction. If we don't know the information, we kniw someone who does.
4meAndyou · F
@Scubaguy027 Good thought. I left a message with his VA agent today, but he never calls anyone back. I really wouldn't have thought of the VFW or the American Legion.
Try calling the county where are he is going to be receiving treatments And see if they have a Department of human services Office That can help you
4meAndyou · F
@MarmeeMarch Thank you so much. We have an update with his situation. He had to go to the ER this afternoon with a collapsed lung, and by making many calls this morning, I found out that his oncologists can send him to skilled nursing care right from the hospital, and it will be covered by his insurance.

He is still dying, and that can't be fixed, but at least now he will have an IV if he needs one, and they will feed him things that he can keep down and get him to his appointments.
iamnikki · 31-35, F
Didn't read this but try contacting a social worker, like at a hospital...the hospice place probably has one as well...

 
Post Comment