Upset
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Glass child

This is something I worry about all the tiny. It's not easy raising two children with special needs. We spend so much time making schedules and planning doing things to make sure our daughter is calm, doctor appointments and therapy. And our oldest has doctors appointment, specialist, physical therapy and extra help needed to help him.

There is hand book to make this easy. I have no idea if I'm doing anything right. I don't feel like it most days.

Then you add in our youngest. Sometimes I can see it in his face as we talk about all their appointments, all the things we need to do for them. How busy our week is because of what we need to do for them.

Sometimes he'll ask what about me, do I have any appointments. Most of the time he doesn't, other than his counseling appointment twice a month. He'll say what about me, or do I have an appointment. I'll point out to him if he does and remind him the days he gets to pick dinner and when his volleyball practice is. But sometimes he still looks a little sad.

Sometimes I feel bad that we can't be a spur of the moment family. Everything is planned out for the week, meals, appointments, activities. Sometimes he'll ask dad can we do this tonight or eat this for dinner instead. I always have to say not this week buddy but we'll plan it next week.

I hate that. I don't want him to feel lost or that he's not as important as they are. That his feelings matter too. I am trying so hard to make him feel this but I don't think I am. Sometimes he just looks sad.

How do I make sure he's feeling as important as them.
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I don’t know how you do that.

I’ll tell you what I do know. I was one of six children. Through our lives one or another of us had challenges. My parents would focus on THAT child, with either resources or money. It sometimes felt they were playing favorites.

But as we matured, we realized that a crisis is a crisis. They were never not there for all of us, but crises require immediate action.

I would suggest you plan a special day for that child in your busy lives. Once a week, once a month…a lunch, a movie, whatever he likes. Let him be the special one for a bit.
Cigarguy101 · 41-45, M
@Mamapolo2016 thank you for sharing this with me, I know it wasn't easy. It's our goal to do something extra special for him at least once a month. I just hope it's enough.
4meAndyou · F
You have to have a special "You are SO special" party for him! Kids love parties! And include cards that say things like, "We are SO glad you are SO healthy and you DON'T have to see the doctor very often! We LOVE you!"
Cigarguy101 · 41-45, M
@4meAndyou it's a real struggle. We try so hard but I just feel like we are failing some days. I just don't want him to grow up feeling like we cared more about them than him.
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Cigarguy101 · 41-45, M
@geoam1 that is a good idea, I might talk to his counselor as well for ideas.
THIS....

perfectly sums up my biggest regret in life.....
Cigarguy101 · 41-45, M
@Threepio I'm sorry to hear that can I ask why or what happened
@Cigarguy101 Spending so much time, energy and assets on the disabled child.... then later in life wondering that if by doing so.... you have actually neglected your other children.
Cigarguy101 · 41-45, M
@Threepio I'm so sorry. It's my biggest fear as well. I just don't want him to feel less important than his brother and sister
YoMomma · 41-45
Schedule something just for him too then?
YoMomma · 41-45
@Cigarguy101 ok ☺ so he can be special too ☺
Cigarguy101 · 41-45, M
@YoMomma he is very special. I think as long as we make the time to do special things for him as well it will help
YoMomma · 41-45
@Cigarguy101 yeah ☺

 
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