It’s Cholesteatoma awareness month !

I started suffering with Cholesteatoma in both ears in 2018, and have been through so many ups and down, scary surgeries and hearing loss. It’s been a terrifying journey, at times I thought I would not ever be able to hear ever again, at times sitting in mri scans and ct scans, I honestly thought I was going to die from this. It all happened during covid so I was not allowed anyone to come to the hospital with me for my surgeries. It was such a scary time.

Cholesteatoma’s are a silent disease. They often form without any pain or symptoms, and you only know there’s a problem when it’s too late; when gross drainage comes out of your ears leaving you thinking what is this, when painful infections happen every 2-3 weeks, once you notice your hearing is getting worse and worse everyday. Then you know something is wrong. Even doctor could not diagnose it and left me for 3 years with stupid ear drops, which made things worse. I am grateful for the ENT doctor who finally made sense of it all and diagnosed me in 2020 and set the ball rolling to remove them.

There defo needs to be more awareness of this life threatening disease, before it’s too late.