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sree251 my whole body is always pouring sweat, I always feel like I'm suffocating, and get burning and stabbing pains in my lungs. My oxygen level drops really low and my nails look blue and my skin is really pale. A lot of times I start to faint from trying to move around and can't do much physically. When I breathe it sounds diseased. I am already on strong immune suppressant therapy called Prednisone, I'm on a really high dose of it, but sometimes organ rejection is steroid-resistant and then patients have to try things like chemo. I'm only 25 and I have a husband, a one year old baby, and a scientist career lined up to start if I get better so I am going to definitely start chemo soon even though it will be rough because I want to try surviving and I know I have no chance without doing chemo. When my disease was untreated and I wasn't on Prednisone yet, the symptoms were absolutely horrific to the point where I wanted to commit suicide and hoped to die in my sleep every night just to escape how miserable every second of existing had been for the past year and knowing there was no escape from it. The Prednisone is helping the symptoms and giving back a little bit of my life. But only a little, I'm still not okay and I want my life back. My situation isn't fair, my case is a unique thing that doesn't happen to other people after they get pulmonary embolisms, I might actually be the first one and I hate that so much. I would rather be the first for something good, not something horrible like this. I'm so mad I'm going to fight it until the very end. And I'll keep you guys on here updated
