I had a trach two months before my third birthday back in early 1973, I somewhat remember it and how it frightened me. I was one of the lucky ones that got off it after only a month, but was so scared I'd be put on a ventilator again. I wish there was something I could say to help you ease your stress, but if you want I can send you Strength and Light to help you through all of your future changes :) 🤗
maythesunrise · 26-30, F
@NativePortlander1970 thank you. Nice to have someone comment who gets it. I'm lucky in that I'm not 100% vent dependent. I know people with SMA who are vent dependent
@maythesunrise (((((HUGS))))) You're so very welcome 🤗
Gangstress · 41-45, F
AntisocialTroll · 56-60, F
Could they not give you a small dose of valium first?
@AntisocialTroll Benzodiazapines slow breathing and could be detrimental when tubes are changed, she needs to be fully alert as well. Read my own comment to her.
AntisocialTroll · 56-60, F
@NativePortlander1970 I know, which is why I said a small dose, 2mg is what I was thinking, nothing heavy duty.
@AntisocialTroll 2mg is not a small dose, that would knock her out for an entire day. I take lorazepam for anxiety to deal with my terminal cardiopulmonary disease, 0.5mg and at almost 300 pounds that makes me loopy.
nevergiveup · M
is it painful.
@nevergiveup Not so much painful as a nasty discomfort, read my own comment.
nevergiveup · M
@NativePortlander1970 I have never had a trach but been intensive care a few times and had a breathing tube down my throat. Not nice when they pull it out.
@nevergiveup Intubations aren't fun either, did you drink throat coat tea to help after they were removed? My late Fiancee swore by it, professional singing artists and rappers use it.