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OogieBoogie · F
I have a question:
Do you have any sort of support garment to help you out, you know, like how women wear a bra , do you have like a 'ball bra'?
I mean...walking, and so many other activities must be difficult.
Do you have any sort of support garment to help you out, you know, like how women wear a bra , do you have like a 'ball bra'?
I mean...walking, and so many other activities must be difficult.
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OogieBoogie · F
@GrowingAndGrowing That's good to know surgery is an option .
But, surely....that's not going to be a one time thing .
I mean , if this is your size now...and your growth is evidently driven by your body chemistry....surely one surgery won't be the end to this .
And how long do you wait?
I mean , it's not just the outside that's growing, so is the inside.
Like, surely the vein/artery structure to provide blood flow is even larger than normal ?
Tell me if I'm being too intrusive.
But, surely....that's not going to be a one time thing .
I mean , if this is your size now...and your growth is evidently driven by your body chemistry....surely one surgery won't be the end to this .
And how long do you wait?
I mean , it's not just the outside that's growing, so is the inside.
Like, surely the vein/artery structure to provide blood flow is even larger than normal ?
Tell me if I'm being too intrusive.
GrowingAndGrowing · 18-21, M
@OogieBoogie Yeah, obviously I'm not a medical professional so I don't fully understand everything, but as time goes on it will get more difficult to a degree, but from what I've heard, my blood vessels aren't necessarily enlarging all the much over time, they're just "spider-webbing", which is apparently a good thing. and you're right, it likely won't be a one-time thing, which is why I'd want to wait as long as I can before getting it. It's a risky procedure, and honestly I have no clue how my condition will progress with or without it. All I know now is, I can still move, and function relatively easily now, so I don't want to risk everything unless I absolutely have to.
OogieBoogie · F
@GrowingAndGrowing ah, that makes sense .
But do remember that a human body is at its physical peak when its in its 20's: prime healing capacity.
Appreciate your practical replies ...and kudos on your mind set .
I've spoken with others who have the same condition, and all I can say is ...don't wait too long.
I've seen how for others, by their 30's , they begin to get so pessimistic - and addicted to that pessimism.
It defines them.
But your attitude is great 😊👍
$300 for a support garment seems incredibly high .
Even women who have like 'w' sized breasts don't pay that much....that's awfully unfair.
But do remember that a human body is at its physical peak when its in its 20's: prime healing capacity.
Appreciate your practical replies ...and kudos on your mind set .
I've spoken with others who have the same condition, and all I can say is ...don't wait too long.
I've seen how for others, by their 30's , they begin to get so pessimistic - and addicted to that pessimism.
It defines them.
But your attitude is great 😊👍
$300 for a support garment seems incredibly high .
Even women who have like 'w' sized breasts don't pay that much....that's awfully unfair.