Only logged in members can reply and interact with the post.
Join SimilarWorlds for FREE »

I Am Living With Epilepsy

I've had my second complex focal seizure since arriving to stay with boyfriend's family.

This morning we were the first ones up and we'd had showers and dressed etc and gone downstairs. Boyfriend asked if I'd be okay while he went for a run because he's missing the gym. I said I'd be fine. His mum had just come downstairs and she came into the kitchen as we were talking and asked if I fancied some breakfast so I was like "of course I'm fine, just go and work off some energy".

Me and his mum just sat eating and talking and she's so nice. And an amazing cook. I honestly can't wait to taste her Christmas Dinner!

Boyfriend's sister came downstairs as well and we were just talking and I started to get the weird sensation that means the seizure is starting. It's a different type to the one I had yesterday. My vision goes weird. Sort of foggy and hazy and I can't understand what people say. I still can't talk properly but I don't really do anything weird. It's more that I just seem out of it and dazed.

I remember his sister was asking me a question and I couldn't figure out what she was saying. It was like the words wouldn't settle into the right order. Apparently I looked really confused and just shook my head. Her husband had told her about yesterday and she had an idea what might be happening. But boyfriend's mum knows a lot more and she realised straight away so she was actually really great.

Apparently as soon as I went a bit spacy, she knew I was seizing and she started timing it and was thinking about how to get me to the floor if it progressed to a Tonic Clonic. She stayed really calm actually so I'm impressed. I was only out of it for a few minutes and just needed a bit of time to get my head back together but she was fantastic. Got me a drink of water, explained what had happened, told me not to worry etc. And then she sent boyfriend a text to let him know what had happened but that I was fine and not to worry.
I think I was stressing over nothing.i don't think his family are going to be weird about my epilepsy.
This page is a permanent link to the reply below and its nested replies. See all post replies »
GkB01 · 51-55, M
Sorry to hear about your challenges, take care.
Psychologykate · 41-45, F
@GkB01 thank you
GkB01 · 51-55, M
@Psychologykate Have you suffered from it for a while?
Psychologykate · 41-45, F
@GkB01 I had absence seizures as a kid but they were controlled by meds. I came off the meds successfully as a teenager and then aged 19 I started having seizures again out of the blue.
GkB01 · 51-55, M
@Psychologykate It's tough as a child to have health challenges, I was born with a condition called Hydrocephalus, a brain condition and although I went to a normal school, coordination issues meant I was fairly useless at much of the PE.
Psychologykate · 41-45, F
@GkB01 I can imagine. I was terrible at PE because the absence seizures meant i would zone out for a few seconds and miss things, especially during team games. The medication also made my reactions slower. I'm sorry to hear you have hydrocephalus. Do you have a shunt?
GkB01 · 51-55, M
@Psychologykate I had 2 shunts in the first 12 years of life, ,the first one didn't work and the second developed an infection around it when I was 12. I haven't had one since, and now am largely unaffected by it. Coordination especially hand/eye can be a challenge, for example I'm not advised to drive but I do play the piano and keyboards to grade 8 standard and by ear as well.

In PE I was a trier and some things I could do but things like apparatus, I was useless at lol.
Psychologykate · 41-45, F
@GkB01 I can't drive because of the epilepsy but I've never had an ear for music. I wish I did but I've just never been able to get to grips with it. I don't know if it's something to do with the focal point of the seizures or just that I'm tone deaf 😂
GkB01 · 51-55, M
@Psychologykate I certainly didn't find music easy especially in the early stages of learning, but it's very rewarding and fulfilling to be able to play. I wouldn't be able to comment on the epilepsy's possible link to being good at music or not lol, and wouldn't want to comment on your being tone deaf or not😂