I Have Epilepsy
(Written yesterday when I got home)
Just got home from Stanford. Brain is fried!! Lots of questions and small tests to answer, mostly to test my memory and motor skills.
As far as I know, this will be the last test. Next appointment will be with the original doctor I saw in August. I need to make an appointment to see him in about three weeks. At the same time, I can see the doctor who gave me today's test and get these results.
I must say that the staff's at the Stanford neuroscience center and at Stanford Hospital are phenomenal!! The team of doctors I've seen throughout this process, beginning with my 4 day EEG in October, and the several MRI's since, have all been incredible. I think part of the reason I say that is that all my other doctors before that, with the exception of the one who sent me to Stanford have all given me the attitude of "take two of these and call me in the morning" I was ready to give up and just live with seizures the rest of my life.
My current doctor wouldn't allow that without putting everything he could into it. When we first met, the last thing he told me just before I walked out his door was, "if I can't help you, I'm going to send you up to Stanford." I literally cried on my way out the door. On our last visit, he came into the office shaking his head saying he was stumped and it was time to send me to Stanford, that he would call them. Again, I cried on my way out the door.
This has been an incredible ride and I am ready to get off with a new look on life without seizures. A lot of you have been there, have seen me go through my seizures and have given me the support I've needed. I can't tell you how grateful I am for the that.
I'm tired and I'm ready to get off this bus!
Just got home from Stanford. Brain is fried!! Lots of questions and small tests to answer, mostly to test my memory and motor skills.
As far as I know, this will be the last test. Next appointment will be with the original doctor I saw in August. I need to make an appointment to see him in about three weeks. At the same time, I can see the doctor who gave me today's test and get these results.
I must say that the staff's at the Stanford neuroscience center and at Stanford Hospital are phenomenal!! The team of doctors I've seen throughout this process, beginning with my 4 day EEG in October, and the several MRI's since, have all been incredible. I think part of the reason I say that is that all my other doctors before that, with the exception of the one who sent me to Stanford have all given me the attitude of "take two of these and call me in the morning" I was ready to give up and just live with seizures the rest of my life.
My current doctor wouldn't allow that without putting everything he could into it. When we first met, the last thing he told me just before I walked out his door was, "if I can't help you, I'm going to send you up to Stanford." I literally cried on my way out the door. On our last visit, he came into the office shaking his head saying he was stumped and it was time to send me to Stanford, that he would call them. Again, I cried on my way out the door.
This has been an incredible ride and I am ready to get off with a new look on life without seizures. A lot of you have been there, have seen me go through my seizures and have given me the support I've needed. I can't tell you how grateful I am for the that.
I'm tired and I'm ready to get off this bus!
