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No help for mum

Last month, mother in laws doctor sent a referal to Social services for them to call and see her and carry out an assessment in order to help us put a package in place to meet her care needs. As a family who have never had any dealing with social services before, we had no clue how to get the ball rolling. She has Dementia and the memory clinic assigned me a support worker as they were concerned I have taken on too much with her care. However.....there is nobody else local to help us in anyway....so....what can we do?
At present, hubs and i visit her daily. In two weeks, hubs goes into hospital for an op and can not drive for 2 weeks after and i dont drive. Also, i will be back to work when school starts up. We were informed we could probably get crisis care for those 2 weeks. But....yesterday, i got a call from the social worker who visted Mum and she told me in her opinion, mum doesnt need any support so they are not going to provide us with any help or support to come up with a care package. She said mum clearly manages to meet all her own care needs and her house is spotless. Of course it is...coz we go there everyday and clean the kitchen, get rid of her rubbish etc.
So ..... dunno what will happen to her that week we cant get there....
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Don’t let this go…get another assessment done with one of you present.
Once you get the proper help it can open up access to benefits such as Carers Allowance and Attendance allowance.
Been there,done that.
If you want to know anything ask me.
RubySoo · 56-60, F
@TheSirfurryanimalWales turned down for attendence allowance. Sister in law is reapplying. Not eligable for carers allowence. Another review will happen...but like i said, i have to take unpaid time off work to be there x
@RubySoo I had great difficulty getting all the help my mother needed but I kept chipping away and eventually Social Services came up with a proper assessment .
That got my mother daily visits ( three eventually) from carers, the assessment led to receipt of Attendance Allowance and allowed me to get Carers Allowance.
We got all sorts of equipment ( such as an air mattress bed with full length rails) installed for free as a result of that assessment.
District nurses called twice a week too.
But it did require that constant chipping away…and my insistence on being present at the assessment!
So they got the right answers…
But getting Attendance Allowance without a proper assessment to back up the application will,sadly,likely get you nowhere.
As I found out.
And that Attendance Allowance will help pay for the Carers because it’s not usually a free service.
RubySoo · 56-60, F
@TheSirfurryanimalWales thanks. Im gonna sound really selfish now.....but her own daughter needs to.pull her finger out and get on to all this. Shes in no hurry coz shes not dealing with it every day like we are. We do ALL the footwork, but mum instist EVERYTHING medical and finacial goes through her own daughter. Suddenly, we are 'only' stepson and his wife and she doesnt think we are acting in her best intetests.
I do all the appointments, hubs runs around like a loon doing alsorts and the sisters come on the phone thinking we exagerate! Hubs has been working 6 days a week for the last 3 months. Hes out at 6am and not home till 6.30 pm. We gonto see her before we eat......and us eating late isnt doing much for my diabetes.
So it will have to be private care.....and her daughter is going to have to sort it. I think we do enough!
Have you contacted Senior Services? This is awful. I sure hope you find someone to help.
RubySoo · 56-60, F
@LadyGrace dont think we have that Grace. Spoken with lots of agencies that deal with supporting older people, but had no joy with actual help.
GovanDUNNY · M
Ask for the name of the Social worker who said she doesent need support for that 2 weeks and that she will be held to account if anything happens.
Make sure she gets to know ,give her something to worry about.
RubySoo · 56-60, F
@GovanDUNNY i have her name.
GovanDUNNY · M
@RubySoo make sure she knows she will be held accountable if anything happens
Dusty101 · F
Omg Rubes, that is shocking. I'm sure you have gone through everything trying to get her that care for the two weeks. I can't believe they're saying she is ok enough to be left to look after herself. Seriously unprofessional. Must be such a worry hon. Hugs 🤗🤗🤗🤗🤗🤗🤗
RubySoo · 56-60, F
@Dusty101 it is a worry....and forgive ne for sounding so selfish...im more worried about hubs and my health more. Memory clinic assigned ME a support worker because of my stress levels.....but this conclusion by SS has made me even more stressed.
So for the next assessment....do we live her to her own devices and not clean her kitchen, take her rubbush, take the rotting food from her fridge, let her continue to OD on painkilkers daily but not take her other meds so they will see how she really lives without a daily visit?
Dusty101 · F
@RubySoo you're definitely not selfish. I can truly understand that. the whole thing does put stress on you and your hubs. You need peace of mind that she's cared for by the health department. I hope it will happen and she gets cared for properly. It would definitely ease the pressure. 🤗
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Stefanv · 61-69, M
There are carers available privately but best to keep asking for care through social services until they respond properly!
RubySoo · 56-60, F
@Stefanv we will have to but i cant set that up. Her daughter who has POA has to. Mum wont give us permission.
They need to do another assessment with you or your hubby there, it is not acceptable for anyone and they need you there to explain how bad it can be
RubySoo · 56-60, F
@Thebrokenmale ive explained to everyone and anyone who will listen for months.clinic and doc agreed a referal, but seems she does not meet 'criteria'. They will do another visit at some point....but it wont be in next 2 weeks. And then i will have to take unpaid time off to be there. We are going to have to pay a private cate team to visit when we cant. Its not about the money...... but if course niw shes been told by this social worker she doesnt need assistance...shes even less open to the idea of having a care call by.
Picklebobble2 · 61-69, M
Tell her daughter that you will insist to social services that all residential care is now her responsibility since she has lasting power of attorney and so technically has responsibility for her legal; financial and health wellbeing.

Tell social services you want to speak to whoever this social workers Senior is.
State very clearly that you're trying to prevent a predictable injury or worse before it inevitably occurs and want advice on rapidly declining situation now.
Not post event !
If you get no joy there go higher up to Area Director and make them aware.
Jenny1234 · 56-60, F
Tell them to come back and reassess
RubySoo · 56-60, F
@Jenny1234 well....its not my choice to make. Mum wont agree coz shes oblivious to her needs. Her daughter ( 3 hrs away) is POA ....so in the end, she can set it up and pay from mums finances. We cant. But...it diesntnimoact ger everyday life so shes in no hurry to do much. She's only visited once sinces mums diagnosis early in the year.
Jenny1234 · 56-60, F
@RubySoo I’m sorry you’re in this situation. It’s truly difficult caring for our ageing parents and trying to find the proper services for them. Is it possible that you could get a doctors referral for the help for the time that you need? I don’t know how things work where you are
RubySoo · 56-60, F
@Jenny1234 it was a doctors referal. Social services assessed her and said she doesnt 'meet the critetia' therefore requires no support. If we wish to lighten our load then it seems we have to sort that out ourselves.
SW-User
Oh no! That’s awful, if you’re doing most things for her she clearly needs help. Are you able to appeal?
RubySoo · 56-60, F
@SW-User not as such, but she said she will call again. Wont be in time for when we cant go though.
iamonfire696 · 41-45, F
I am sorry you’re still dealing with this.
RubySoo · 56-60, F
@iamonfire696 i will be dealing with this for the rest if my life. She will outlive me for sure.
I have had a horrible horrible day.
iamonfire696 · 41-45, F
@RubySoo I am really sorry because her daughter should be dealing with this. I am sorry you and your husband are stuck taking this abuse.

 
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