What would YOU do?

My sister has had an undiagnosed condition for three years now... twitching in her legs daily, muscle pain like you just ran 1000 miles, and leg fatigue. She has seen neurologists, physical therapy, rhematoid doctors and her PCP. Multiple MRIs and blood work. All negative. She's had some genetic testing...that was negative. She has wanted to end her life because the symptoms are there EVERY day, all day. She tried to do a study, but was rejected as they could only accept so many participants. She's at a dead end, what would you do? She does have another appointment with a sixth neurologist, but that may lead to no answer as well. Any ideas?

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Threepio

Any ideas?

My spouse went through the same thing for a YEAR...(with the same symptoms).... FINALLY a young intern (Hip/thigh doctor) listened to her complaints and told her "You have just described what happens when you have a pinched nerve in your spine". So he ordered another MRI (4th one this past year). We have spent 1000's on co-pays this past year.... and when the MRI came back.... a spine doctor at the same institute that the young intern works at told my wife "The MRI shows a pinched nerve in your spine."

She has seen like 8 doctor "specialists" for her thigh/leg pain and numbness and a doctor in training sees her for 5 minutes and tells her exactly what the problem is.

SMH: I feel like the past year has been an exercise in "Finding our wallet" and the medical professionals certainly have done that....

cherokeepatti · 61-69, F

@Threepio for some reason regular doctors do not diagnose such things very well. I had better results with a chiroractor than a MD with my back. MD’s want to sit down and write out prescriptions for drugs. Also sometimes there is a parasite lodged near the spine that can cause all kinds of continuous back pain and the doctors can’t seem to figure it out but a chiropractor can. Happened to man in my city, he went to over 2 dozen doctors with no relief and them saying they couldn’t find anything wrong. The chiropractor ran a test for parasites and gave 2 doses of meds to kill it out and the pain was gone within hours of the second dose.

Coralmist · 41-45, F

@Threepio Wow, what an experience...Ill tell my sister. To think a doc in training,!