What would YOU do?

My sister has had an undiagnosed condition for three years now... twitching in her legs daily, muscle pain like you just ran 1000 miles, and leg fatigue. She has seen neurologists, physical therapy, rhematoid doctors and her PCP. Multiple MRIs and blood work. All negative. She's had some genetic testing...that was negative. She has wanted to end her life because the symptoms are there EVERY day, all day. She tried to do a study, but was rejected as they could only accept so many participants. She's at a dead end, what would you do? She does have another appointment with a sixth neurologist, but that may lead to no answer as well. Any ideas?

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cherokeepatti · 61-69, F

have they ruled out neuropathy? I have read that some with that have been treated with alpha-lipoic acid and had good results. It’s a fatty acid and a nutrient.

Coralmist · 41-45, F

@cherokeepatti They did rule out neuropathy but heck at this point maybe they can treat her with a med they use for that..the symptoms are similar. However she doesnt have the typical burning needles in feet or hands.

cherokeepatti · 61-69, F

@Coralmist maybe the nutrients is what she needs. Sometimes they miss a diagnosis until the condition gets full-blown. They did that with my daughter’s thyroid condition. They tested her and she kept having symptoms that would get treated individually and then I asked for her thyroid to be retested and it made the doctor mad. I told him it was time to get it done again. I got home school forms that he had to fill out so backed him into a corner where he would have to do testing. Oh he was mad about it, left us sitting in a room for over an hour by ourselves after I handed him the papers. He tried to tell me she could have parasites or whatever and had her tested for that and some other things too. Tests came back that she had Hashimoto’s thyroiditis….sent her to a pediatric specialist and we never had to deal with his ass again.