Not happy about being sick on March 8th

March 8th 2024 is the day I had gotten sick. I was admitted into the hospital because of a seizure. I usually do not have to be admitted into the hospital when this happen but I guess this particular time was different. I was nervous about this month coming because like me my dad's birthday was this month too just and mine was yesterday. Right now I feel that I have no one to talk with other than my mom and brother. I am sad but I am trying to upbeat because I do not want to be a patient in the medical hospital again and I do not want to start on another seizure medicine.

I did not want neither my mom nor my brother to leave me. I don't have many friends, the friend I did have is living in California or I have no idea of her whereabouts. We grew up in elementary school. I had searched the computer for this friend but had no luck. I remember the last time I had spoke to her on the phone in 2006, she sent me a letter saying that I had said something that hurt her feelings. I wrote her 3 times asking what did I say but I did not receive a reply from her. One time I had went to job interview and while I was gone, I was hoping she received my letter and was planning to write me back. When I called home, I was told by my brother and mom that my letter came back with a yellow sticker stating that she did not want me to write anymore and do not send anymore letters. When he said that I wondered what did I say? for her to be mad at me like that.

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Jessmari · 41-45

Dealing with seizures without support is a scary thought. Not to mention dangerous. I hope you can find the support you need.

Try to keep your stress levels down as well. In fact try to cut them out if you can. Things like that can play in your head over and over while in a seizure making them worse.

taLking5 · 51-55, F

@Jessmari I am trying to keep my stress level down because things keep playing into my head. Some of it I try not to talk about some of it. you are right when you say that thoughts can play in my head over and over making them worse.

For a long time I had been taking only three Dilantin tablets. One tablet in the morning and two at night. Now I have to take 2 tablets of Dilantin in the morning and 2 at night. Frogman was right when they said that I was dealing with a lot of emotional stress. I am and I am trying to let it go.

twiigss · M

@taLking5 I have seizures too. I've been taking 2 100mg Dilantin capsules in morning and 2 capsules 12 hours later. Staying on that 12 hour schedule seems to work good for me. Been taking it for 24 years now.

I just had a recent scare with the meds and I gotta keep on top of it because a seizure means I lose my license and can't drive.

taLking5 · 51-55, F

@twiigss I can not drive either. Although some people ask me do I drive, I say to them no I don't and I tell them the reason I don't. I used to live in California and since being in this state, I have not drove, I want to drive but no doctor would give me license. I used to be on 3 tablets of Dilantin for over 10 years. It has helped me. I had taken 1 pill in the morning and two at night; now they have me taken 2 pills in the morning and two at night.

It hurts that life is not the same anymore. It seems like I do not not have support I just have support from my mom and brother. The people we used to know are gone one way or the other.

twiigss · M

@taLking5 I was driving and living a normal life up until I was 24 years old. Then all of a sudden I just started having seizures for no reason at all.

When I was initially prescribed Dilantin, I was told to take two pills every 12 hours. This was 24 years ago by the way.

Since that time I've had a total of like nine more seizures, and that's just because I wasn't taking the medication as it was prescribed, then it was forgetting doses etc. etc.

So anytime that I do have a seizure, it's reported to the state, I have to mail in my driver's license and typically I can't drive for 6 months. And the way it works is I do blood work and the doctor my neurologist, he sends those blood lab results into the state, and that's how I get my driver's license back.

Once the state sees that I'm good or that my blood levels are at a steady level with medication, then they give you your driver's license back and they clear you to drive. A lot of people think a person having seizure disorder equals "oh well you can't drive" and that's just not true.

But I hope you can get support and everything like that. Take care 🙂

taLking5 · 51-55, F

@twiigss I was normal until the year 1992, I was 23 or 24 years old. When I first began taking Dilantin I was put on 3 tablets. Then I had a few more seizures after that. When I had the seizures, I was not admitted into the hospital, they tested to see if I could walk then let me rest in the ER bed then sent me home. This time I was hospitalized and my right arm is feels like it has tingles in it but I have strength in it. I was told that some people would experience numbness, weakness or whatever after a seizure.

My problem was I was not sleeping much, maybe 3 or 4 hours a night. There were times I forgot to take my pills and then there were times I forgot that I forgot to that I had taken my pills. And I was not eating much either. I was sadden because of reasons, I was sadden over the fact I had lost many people I used to know and I had lost pets and etc. I am trying to get back into the swing of things. I never knew how to drive but right when I was considering it when I was in my 20s, I got this stupid disorder.

taLking5 · 51-55, F

@twiigss The same thing happened to me. I had a normal life until 1992. Before seizures, I worked and was an active person. At the time, I planned to drive because I wanted to be independent. When I first began having seizures, they kept me in the hospital for 4 days because they did not have any idea why I began having seizures. I had a MRI test and other tests but the results came back cleared, nothing was found. I remember a few years before that I had playfully bumped my head on the top bunk bed I had, it wasn't a hard hit and I did not think anything about it. At the time my sister accused my mom of causing them so today whenever I have one, my mom would instantly feel guilty about it. When I came home on March 8, 2024, my mom watched my every move. She kept saying that she is sorry for causing me to be sick. No matter what I say, my mom still believe she caused it.

twiigss · M

@taLking5 I honestly think it's something we ate or some unknown, outside force that is the cause.

I can still work and drive and still on medication.