any ideas to help our daughter?
we have been testing out some appliances to see if my daughter is able to use them. She has Primordial dwarfism and is six years old at 1’5” tall and 18 pounds. We have So far but a child sized sink in there for her just to test with. She is able to use it with a learning tower and much longer faucet that she is able to reach which is amazing, without this child size fixture is still too big for her. When it comes to the toilet though, we are still looking for some ideas. Even with a child size toilet, it is a bit tall for her, and the seat is still too big for her. I know for regular sized toilets they make adapters that make it into a child’s size seat, but in this instancewe need something that would make the already small child sized seat into an even smaller one. Also, what could we do for the shower?
We are also struggling to find a solution for the stairs. She struggles climbing up/down the stairs. given her age she wants to do it independently instead of me having to carry her. She can do it by herself, but it’s done ittle kid style and it takes a while, plus it takes a lot out of her. (I don’t even know if there is a solution but anything helps) right now it is just a huge task for her, it takes a lot of effort for her just to climb up one step. The handrail is way too high for her to reach, even if she could reach it it is way too big for her to wrap her hand around, and we also have to watch out that she doesn’t fall through the banisters. Just for reference, I measured one of our steps and I’m pretty sure it is regulation that they are 7 inches or so in height, that is almost half of Clara‘s height. If you can imagine how hard that would be for even adults to do for every single step.
Also when she is sitting at our kitchen table, we can barely see the very top of her hair when we are sitting across from her. Our table is a normal sized one, but relative to her it is huge. I imagine a small for their age 2 year old sitting at a regular sized table and chairs. Ideally we would like to get her sitting up high enough to see over the table and be able to rest are arms on it and eat with us comfortably, All the while being able to get in and out of the chair by herself. She honestly needs a highchair in order to be at the right height, but she is six years old, I think she’s a little too old to be in a high chair. Some people have mentioned the trip trap, I am just wondering if she would be able to get into and out of it on her own? And if the actual seat part would be small enough for her.
What should we do about this when we go to restaurants? Usually when we sit at a booth or a chair, we can’t even tell she is there. And we have tried using the boosters they provide but that just raises are high enough to barely be able to see over the table. I would love to get her all the way up to be able to eat comfortably and be a part of the conversation, not just under the table.
Also at our house, the furniture is regular sized, but for Clara it is like oversized furniture. We would like some thing for her to be able to get up onto the couch. Right now she has to really struggle just to climb up. And when she finally does get up on the couch she doesn’t really fit because it’s way too big. Is there something that could get her up sitting high enough to be level with us and also fit a little more securely? Kind of like a booster seat except One that is a little more couch and comfortable like. And preferably all of this she can get up into her self.
And when she is walking around, especially in public. People aren't expecting a toddler sized six year old at times. I want to let her walk around when she has the energy for it, but a lot of people are in a hurry or just not paying attention and have bumped into her, which at Clara's size means that she gets trampled over, or they will just step over without realizing (This has only ever happened a few times but it still happens$
Is there something she could have/where/hold to be more noticeable? We have tried clothing items but still that didn't do anything. It's almost like whatever we do it needs to be more in the line of sight for grown-ups if that makes sense
And one last thing, we have tried a whole bunch of stepstools and learning towers to try to get Clara up high enough in order to reach the kitchen counters in sink in a way that is usable. Because of a ride she needs to be up pretty high, so she can lean in as far as she can given that even at that point she still wouldn’t really be able to reach very much. it would be great if she could also use the kitchen sink when she wanted. Faucet controls and the water are way way out of reach,
Do y’all have any advice for these issues and questions?
We are also struggling to find a solution for the stairs. She struggles climbing up/down the stairs. given her age she wants to do it independently instead of me having to carry her. She can do it by herself, but it’s done ittle kid style and it takes a while, plus it takes a lot out of her. (I don’t even know if there is a solution but anything helps) right now it is just a huge task for her, it takes a lot of effort for her just to climb up one step. The handrail is way too high for her to reach, even if she could reach it it is way too big for her to wrap her hand around, and we also have to watch out that she doesn’t fall through the banisters. Just for reference, I measured one of our steps and I’m pretty sure it is regulation that they are 7 inches or so in height, that is almost half of Clara‘s height. If you can imagine how hard that would be for even adults to do for every single step.
Also when she is sitting at our kitchen table, we can barely see the very top of her hair when we are sitting across from her. Our table is a normal sized one, but relative to her it is huge. I imagine a small for their age 2 year old sitting at a regular sized table and chairs. Ideally we would like to get her sitting up high enough to see over the table and be able to rest are arms on it and eat with us comfortably, All the while being able to get in and out of the chair by herself. She honestly needs a highchair in order to be at the right height, but she is six years old, I think she’s a little too old to be in a high chair. Some people have mentioned the trip trap, I am just wondering if she would be able to get into and out of it on her own? And if the actual seat part would be small enough for her.
What should we do about this when we go to restaurants? Usually when we sit at a booth or a chair, we can’t even tell she is there. And we have tried using the boosters they provide but that just raises are high enough to barely be able to see over the table. I would love to get her all the way up to be able to eat comfortably and be a part of the conversation, not just under the table.
Also at our house, the furniture is regular sized, but for Clara it is like oversized furniture. We would like some thing for her to be able to get up onto the couch. Right now she has to really struggle just to climb up. And when she finally does get up on the couch she doesn’t really fit because it’s way too big. Is there something that could get her up sitting high enough to be level with us and also fit a little more securely? Kind of like a booster seat except One that is a little more couch and comfortable like. And preferably all of this she can get up into her self.
And when she is walking around, especially in public. People aren't expecting a toddler sized six year old at times. I want to let her walk around when she has the energy for it, but a lot of people are in a hurry or just not paying attention and have bumped into her, which at Clara's size means that she gets trampled over, or they will just step over without realizing (This has only ever happened a few times but it still happens$
Is there something she could have/where/hold to be more noticeable? We have tried clothing items but still that didn't do anything. It's almost like whatever we do it needs to be more in the line of sight for grown-ups if that makes sense
And one last thing, we have tried a whole bunch of stepstools and learning towers to try to get Clara up high enough in order to reach the kitchen counters in sink in a way that is usable. Because of a ride she needs to be up pretty high, so she can lean in as far as she can given that even at that point she still wouldn’t really be able to reach very much. it would be great if she could also use the kitchen sink when she wanted. Faucet controls and the water are way way out of reach,
Do y’all have any advice for these issues and questions?
36-40, F
