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Flowers90 · 26-30, F
I got misdiagnosed with lupus a few years ago, but I do have another autoimmune condition too..some days are easier than others
Ladyred · 46-50, F
@Flowers90 So when you face Er visits, what can your friends do, feeling helpless to attack your pain, to cheer you up and make you want to fight yet another day?
Flowers90 · 26-30, F
When I come home they sometimes come to hang out, or they call me and talk for a while @Ladyred

lovelywarpedlemon Best Comment
Probably play some music, watch a movie, smoke weed with you, & ask questions about your experience. Or however you like to spend time. Sometimes there's nothing you can say.
cherokeepatti · 61-69, F
There are things you can do to help your condition such as diet, handling of stress etc. My daughter had it from the time she was 12 and I would take notice of the foods that she started craving and read about the benefits of them and they all had on her condition.
Longpatrol · 31-35, M
Truly very sorry to hear that. My mom passed of lupus when I was a kid. Back then there were no good ways of managing the condition, all I can say is medicine has improved such that you can have a decent quality of life.


I hope everything turns out well for you.
Ladyred · 46-50, F
@Longpatrol I am so sorry to hear of your Mom's passing. No matter how much we push stupid people, their are still brilliant brains out there pushing every day for real cures. Thank you!
MarkPaul · 26-30, M
Hydroxychloroquine is no longer being used as a political prop by Hidin' Insurrectionist Baby-trump and "the base."
MarkPaul · 26-30, M
@Ladyred Hydroxchloroquine is a therapeutic drug approved for treatment of Lupus. The more you know... ✴️
Ladyred · 46-50, F
@Wiseacre No worries that is why you are on similar worlds saying this not some other nonsensical sight! (;
Ladyred · 46-50, F
@MarkPaul As they say, " oh just try this next drug" this time we figured it out! (;
Ladyred · 46-50, F
Thank you(;
@Ladyred thanks for BC :D
SW-User
Not sure I'd have the words. I'd just try to be here for you as I could.
Wiseacre · F
Let’s go for a walk and talk about it.
Ladyred · 46-50, F
@Wiseacre That would be amazing! (;
JoyfulSilence · 46-50, M
I am not sure what to say.
Ladyred · 46-50, F
@JoyfulSilence no one knows what to say, but this is reality for some amazing people! All that matters is that your voice is heard! (; and I love you..(;
JoyfulSilence · 46-50, M
@Ladyred

I hope you and your loved ones do not have it.

Thanks for your love.
Nothing ...it sux.

I'd bring chocolate and a good quality cappuccino to cheer you up .😊
Ladyred · 46-50, F
@OogieBoogie Chocolate, dark chocolate and expresso..mmmm..(;
Ladyred · 46-50, F
Thank you! (;

 
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