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DearAmbellina2113 · 41-45, F
God yes.
Asking the doc for a specific test because I KNOW I have all the symptoms of a particular condition, only to be laughed at, assured that I couldn't possibly have that condition...then after 50 negative tests for OTHER conditions, he finally gives me the test I asked for and it's positive. 🤬
Asking the doc for a specific test because I KNOW I have all the symptoms of a particular condition, only to be laughed at, assured that I couldn't possibly have that condition...then after 50 negative tests for OTHER conditions, he finally gives me the test I asked for and it's positive. 🤬
NeuroticByNature · 41-45, F
@DearAmbellina2113 also coulf have been about $$$$. They makr $ off those tests.
DearAmbellina2113 · 41-45, F
@NeuroticByNature which is way shittier
NativeOregonian · 51-55
@DearAmbellina2113 That is how I found out I have CTEPH, by forcing tests to be done to find out why I had severe shortness of breath and extreme fatigue during activity.
DearAmbellina2113 · 41-45, F
@NativeOregonian it's how I was diagnosed with PCOS, Chronic fatigue syndrome, and Fibromyalgia.
NativeOregonian · 51-55
@DearAmbellina2113 *hugs* I am so very sorry you have those :(
My mother has fibromyalgia as well, she spent years, and thousands of dollars out of her own pockets, and doctors laughing at her, before she found a sympathetic one that finally gave her the proper tests that officially diagnosed her.
My mother has fibromyalgia as well, she spent years, and thousands of dollars out of her own pockets, and doctors laughing at her, before she found a sympathetic one that finally gave her the proper tests that officially diagnosed her.
DearAmbellina2113 · 41-45, F
@NativeOregonian it's a damned shame how ostracized the medical community makes us feel.
MellyMel22 · F
@DearAmbellina2113 That b*stard!
NativeOregonian · 51-55
@DearAmbellina2113 It is, and the motherfuckers ALWAYS blames our weight. I am fat because I am sick, I am NOT sick because I'm fat >:(
DearAmbellina2113 · 41-45, F
@NativeOregonian yeah I have dealt with that too, from the judge at my disability hearing. He failed to notice that my medical records show my weight increased AFTER being diagnosed. 🙄
NativeOregonian · 51-55
@DearAmbellina2113 My weight didn't even come up at my disability hearing last month other than I get severely short of breath and extreme fatigue during exercise.
NativeOregonian · 51-55
@DearAmbellina2113 It actually took me over two years to finally get a prescription for bed time oxygen use, both my lung specialist and a sleep specialist kept trying to push sleep apnea and the use of a bipap machine, which made me feel like I was suffocating. Finally my coumadin clinic doctor listened to me and understood that maybe all I needed was night time oxygen to help me feel better in the morning.