I Am Living With An Incurable Disease Or Illness
Over the past 18 months, I have developed significant motor neuron disease. The neurologists all believe that I have ALS, but none shared that diagnosis with me until 5 months ago.
61-69, M
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PoetryNEmotion · F
Do you have a definitive diagnosis? Are you being followed closely by a team of professionals? How are you handling this?
ms20182878 · 61-69, M
@PoetryNEmotion There is no test for ALS, so the diagnosis is made as the symptoms increase more and more. I have seen 4 neurologists and they are all in agreement. The medical community really doesn't have any significantly beneficial treatment to offer. I am doing two other treatments also. How am I handling this? Well... no one gets out of here alive... :>) I'm a follower of Jesus, so I know what my future holds. As I live out the end of my life, however long that might be, I want to live it out well and make the transition as easy and smooth as possible for my family.
PoetryNEmotion · F
@ms20182878 I am sorry for your condition. I wish you some good luck. And a treatment in the future. Light and love.