It's been about a month with the new hospice. It's going much better. The aide dad has now is a guy, and he's wonderful. I like him very much. The nurse is warm and caring. Matter of fact so far I like the hospice very much. The down side, course there has to be, I can have only one hour a month for respite. That means I can have a sitter for one hour a month for me to take care of all my business and go grocery shopping. I honestly don't know how other people manage or have managed being a caretaker. I'm a introvert I don't have bunches of friends or belong to a church. Somehow though I get by. Dad is doing great. His pain level has gotten higher but still on just hydrocodone. My granddaughter came to visit and got him to smile. He loves her so much.
I know this post is late but let me say I sympathize with you. I've been a caregiver for 11 years now and I'm about ready to snap. I need respite care and there doesn't seem to be any low cost to no cost care. No volunteers in this world to do it.
@Mguinm Being a caretaker is a hard job. 11 years is a long time without any relief. God Bless you. My brother is staying with me now but he works. He has two days off and you better believe I take those two days for myself. It helps some but I’m still exhausted. I feel for you. It is outrages how these companies don’t provide any kind of respite care. I gave up trying to get anything from the hospice I have. They ask me is there anything you need? I would tell them and then nothing. Excuses mainly. I feel for you hon. I wish there was more I could do. This experience has left me fearing for the time I’m not able to take care of myself. I know this has taken years of my life away because of the stress. I just pray I go quickly. Again God Bless You!
@Silverlady I feel for you so badly. I'm so sorry. I will certainly pray for you to get some relief but I'm very glad your brother is there to help. Yeah these companies are truly a crock saying I'll help you and then they won't help with what you truly need. I try to get respite care and it's so expensive I'd need to take out a loan for it. God bless you!
