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I Have Polycystic Kidney Disease

my PKD was discovered in 2009 as a result of a blood test but I was not diagnosed with this until 2016. My PKD is a result of another syndrome which causes it in adulthood. I have been on dialysis ever since.

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Mona86 · C

So you were diagnosed 12 years after it was ' discovered' how're you still alive?

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Mona86 · C

@Alanuin having 5% of survival you'd have to be attached 24 /7

Alanuin · 36-40, F

nope, not true, i have been around hospitals my entire life, i know what i'm talking about. I'm guessing you don't know anyone who has dialysis?

Mona86 · C

@Alanuin my brother had kidney disease but I don't know how he is alive neither

lasergraph · 70-79, M

Sounds like you do the Hemo. My brother-in-law did the Peritoneal dialysis at home. It is life changing and you are very young. Is their a transplant chance in the future? I wish you all the best.

Alanuin · 36-40, F

@lasergraph i am on the list at the moment, so yes there is a chance in the future that i can have a transplant, the doctor's didn't think Peritoneal was right for me because i had surgeries in the past which may effect it.

lasergraph · 70-79, M

@Alanuin There is no good solution, either way it sucks. I know it is a struggle.

Pfuzylogic · M

My Grandfather went through dialysis.
I pray for your strength.

Alanuin · 36-40, F

@Pfuzylogic thank you very much, i hope it helps.

Pfuzylogic · M

@Alanuin
I sincerely do.
I miss him.
This was in the 90s.
It was an exhaustive process for him.

AbbeyRoad · 26-30, M

Sorry you have to go through this, it must be really hard...

SW-User

I'm sorry about that.

amvanquish · 51-55, M

Sorry about that.

Goralski · 51-55, M

:((

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