Crohns Disease

Found this place looks like a good way to vent and get stuff out with only.strangers judgements not everone i know knowing my thoughts. When i try everyone assumes im looking for pity when all i want is to talk. Im tired of life and feeling like a burden to everyone. I been flaring since yesterday. I asked my guy to run me to the store for some medicine. The store ten minute away it was a quick trip in and out medicine and coffee and tea. He acted so pissed because i took him away from his labtop. I try to stay as independent as i can. I was worried about driving i been really weak for two days. He really made me feel bad. I just wanted some medicine so i might actuality get some sleep tonight and give my tummy a small break. Why do i feel so guilty for asking him to drive for me? We been together 16 years. I cant stand it when he makes me feel bad for being sick. I would love to have any kind of control of my stomach. I just wasn't granted that luxury in life. He is usually good about helping me but here lately hes not. I get silent treatment when i have him do something he doesn't want too. I really feel like crying but if i do that then im just making him feel bad. I feel damned if i do and damned if i dont...

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Motzu

It's just a phase. I went through this as a care giver for a while. He still cares, but other aspects of the mind compete with one another in a darwinian competition, and some repressed aspects are surfacing (these parts of the mind need to occasionally stretch their legs to maintain a overall healthy psyche). Humans naturally rotate in and out of various personality aspects when they are underused. Just let him be cranky and get his work or R&R in for a while, and act like a short tempered teen rebelling against being told what to do. If he has been with you for 16 years he will come around again. Let it go on a bit more and then remind him again why he loves you.

BabydollK45 · 41-45

@Motzu thank you ill try. I got to get my energy back up before i end up in the hospital for the millionth time. Hoping he just needs time. I know its hard on him too. Im trying to keep that in mind. I think its hitting me different tonight because i dont feel good. My emotions are a bit high. Truthfully it felt good to just tell anyone this.

Motzu

@BabydollK45 Have you tried Vagus Nerve Stimulation using electrodes? You can get them off amazon now.

https://www.amazon.com/Clips-Vagus-Stimulation-Silicone-Electrodes/dp/B0C1GB3B1Q

I knew a home health aide who had a similar condition to crohn's disease (started with a P, can't recall the name) and a doctor at cleveland clinic about 4 years ago, just before covid discovered one of his patients stopped having symptoms once he stimulated electrodes hooked up to the vagus nerve in the ear, and when he stopped the symptoms came back, and so he restarted them and they went away again. It was quite the WTF moment.

He came up with a plastic printout device that targets the vagus nerve at a few different spots in the ear, it looked like the symbol for music, white in color:

Closest thing I can find online is this:

So I looked around the net just now, since I can't remember the name for the intestinal disorder and just looked up IBS and found people buying electrodes off amazon.com to experiment with.

I make no promises and don't really understand the phenomena, and there are a few different points that need stimulated, but the vagus nerve does control gut reflexes. You might get a use out of it, after some trial and error (like I said, a few different points in the ear needs stimulated at once, so isn't as simple as clipping the ear at random) and the device isn't too expensive off amazon. Fairly cheap.

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