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i didnt know how hard raising a non verbal child was

My son is too much, hes doesnt speak as much but tries to sing a long to songa but he doesnt really know much words..iv been indoors with him for months no childcare or a break . everyday he sleeps late and wakes up fucking early and doesnt nap anymore.. i get so overwhelmed he just makes high pitch noises and just doesnt sit the hell still.. its even worst with the wether being so cold i just been atuck and im dying for the summer to come so he can go outside and nowadays i im going to put gim back in daycare bc i need a day to myself where im not hearing jumping and screaming and fucking seeing a mess everywhere like im so done and i fucking hate being a parent sometimes because im foing it all by myself . im at war with myself because i know some ppl cant deal with a child like this and i pulled him out of a daycare where i felt they were being negletful i even files an acs case but lord i cant take it no more i need peace ag least for a couple hours i dont know how iv managed to have this child for months weeks and not even a breath of air.. sometimes when he galls asleep which is now 11 pm 11 fucking pm ill go outside and have to smoke bc i get so angry .. i just cant do this i dont know how imma be able to help this child i camt take care of my damn self .. iv been abused so bad that im just lost and i cant heal properly and im always fucking angry to even deal with a child on the damn spectrum
OogieBoogie · F Best Comment
Oh honey.....that must be flipping soul killing to be srretched that tight for that long.

You do need some sort of break, just a few hours now and then to recharge, calm down .... prolly SLEEP is high on your list.

I don't know the age of your child, but i do know when they are non verbal, it takes the stress level up on both sides, and the lack of communication wrecks you, and causes them to get frustrated amd have meltdowns.

I dont know if itll help , but look into "Proloquo2Go" (there may be other online programms like it now). - its a program that uses images with words, (PECS {Picture Exchange Communication System }cards), to help non verbal people communicate.

I used the hard copy version with my son years ago, (it was a folder stuffed full of pecs (cards that he could eventually formulate short sentences with).
Then it moved to tablet form with sound and everything.
I think there may even be apps for it now.
" Pecs Talk" is one - although i never used it (i just looked them up now).

When they cant speak - its so hard for them, (and you). It kills you inside. You have a child that you feel you cant know properly and it tears at your heart.
It drives up their frustration and stress and is a huge feeder for difficult behavior.

Im totally stunned that no one has offered you help or guidance to places that can help your child work towards communicating in some way .

Coz by the sounds of it - you need it.

And the sooner you start, the better for ypu both.

I know aftery child finally had a commication system - so many parts of their behavior got better. Better sleep, less tantrums and meltdowns and the screaming stopped.
Apps;

Physical format (still often used for visual task lists and learning)

Techy format

They are so good. You can even use them to communicate back, (coz sometimes words are hard to process and pictures are easier).

They are good for letting them know what they are going to do that day, or what's for dinner etc. it also helps them learn to read.
(Which is great, as not all nonverbals will end up speaking - but they CAN learn to text which is BRILLIANT).

Is it possible to see a doctor or a nurse or someone to refer you to someone who can assist you in helping your child?
There has to be some sort of program or service or funded child development specialist clinics or something that you should be being told about to access.

Having a child with special needs is too much for one parent to cope with on their own

You'll burn out.
Pillowtalk714 · 31-35, F
@OogieBoogie yes i need sleep badly , right now i am in the process of getting him therapy godwilligly he will be starting by next month.. I realy realy really appreciate you for this valuable information. It is so hard at this point and time so i will definently look into those apps and read up on that pecs system.. Im hoping this will help !! thank u so much again this takes a weight off my chest ..
@Pillowtalk714 i know its SO incredibly hard now.
But it WILL get better.

All i can offer you now is, (and you might not see it coz you are LITERALLY living moment to moment) is this:

+There's a reason you got chosen by the universe to be the parent of your child - not just any person can do this.

+ You are stronger than you think. Sleep deprivation is a form of torture.
You are going thru early parenthood, of a unique child, while being tortured.
- DO YOU KNOW HOW STRONG THIS IS MAKING YOU ?
- when life finally calms down, your child gets commincation and everything settles - you will find yourself in a place not many ever achieve :
+ with a higher perspective
+ AMAZING resilience
+ And a sense of gratitude most never understand.

Hang in there
Pillowtalk714 · 31-35, F
@OogieBoogie the lord is kicking my butt , yes thank you for putting this into perspective for me bc i wonder why this is all happening. I believe there is a bigger plan, i usually pray and believe God has a special angel watching me. I literally have no one.. i very much appelreciste this and you gave heaven sent, May God give you so many blessings. My mental health health is bad so i am grateful that you gave ne so much valuable information. one day its going to be worth it right

Having a kid is tough especially alone.. especially if they are special needs.. you need a break to just breathe.. 🙁 do you not have anyone that can help you or are there any programs for kids in your area you can go to to catch a break? *hugs*
@Pillowtalk714 yeah i had to babysit a screaming baby once.. when he finally fell asleep another girl woke him back up and he kept screaming.. i had to call my mom to come get him 😳 having a kid is rough work 😳
Pillowtalk714 · 31-35, F
@SStarfish oh girl i feel you!!! kids are tough and i dont want any more lol
@Pillowtalk714 i wanted one but never had one.. but having other people's kids around helped sooth my soul's longing.. i had adorable ones.. but they demand a lot of energy and attention it can drain a person sometimes i was happy they could go home somedays 😅 but you get no such break unfortunately it seems ..
Casheyane · 31-35, F
I feel hypocritical enough to say this. But if you have options like family and friends, maybe it's time to ask for help.
Pillowtalk714 · 31-35, F
@Casheyane sadly no but i do have a childcare option , i am thinking of finding a safe olace to put him bc you know ppl take advantage ☹
wudifu · 46-50, M
A mothers life
Pillowtalk714 · 31-35, F
@wudifu agreed !!!

 
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