I Have Non-24-hour Sleep-wake Syndrome
It's Not Me, It's A Friend... I don't want to give too many details for the sake of privacy. It's someone very close to me. I've seen the way it affects her ability to live a normal life.
Doctors, don't make me laugh. You go to a sleep clinic and all they do is test you for apnea. I called hospitals and clinics, but with one exception they didn't even know what I was talking about. Step one to getting help, I'm told, is to keep a log of your sleeping/waking times and how well you slept, etc. Who can do that when they're half dead?
Supposedly, this is a rare condition. Well, they once thought Lyme disease was rare, too. This needs more publicity and educate more doctors to recognize and treat it.
Doctors, don't make me laugh. You go to a sleep clinic and all they do is test you for apnea. I called hospitals and clinics, but with one exception they didn't even know what I was talking about. Step one to getting help, I'm told, is to keep a log of your sleeping/waking times and how well you slept, etc. Who can do that when they're half dead?
Supposedly, this is a rare condition. Well, they once thought Lyme disease was rare, too. This needs more publicity and educate more doctors to recognize and treat it.
61-69, M