I Am Tired of Having to Explain My Pain and Need of Pain Meds

@2cool4school thank you. What sucks is my pain mgmt Dr left his practice and I don't get to see a new one till August. He left back in December so it. Hope you're doing better

@McShay1978 oh geez that's a nightmare I've yet to experience. My paint mgmt doc had one doc pass suddenly and another just dropped his practice leaving over 100 new patients which makes scheduling hard and if they make a mistake on a script or forgot a med They'er too busy to help much. The quality of care has gone down ever since all my docs separately came to the conclusion I'm gonna be in a lot of pain for life. But I'm on Medicare and they hate that so I get very minimal help now outside writing scripts. My pain doc says "well nobody can fault you for trying everything instead of meds.too bad ok next "
It's just such a low quality of life too I have it well in some areas but others it's a mtn to climb. I live at 7800' I spent over 100 days on snow the past 3 seasons but it takes everything I have meds only go so far motivation in pain is my hardest. And I sleep 4 hours at a time at most and usually it's 4 every 48 hours but in breakthrough bouts I'll go 4-5 days without sleep and or food either from no appetite or I have chronic vomitimg triggered by pain too as well as ugly stress induced psoriasis. I'm just so sorry other people know this kind of pain I earned mine from not listening to my body.

@2cool4school we live in the area where our body doesn't like the cold and snow. If I could move, I would do anything I could to feel better. The issues is that people who abuse the system, hurts the people who need it.

@McShay1978 sadly so true Hun. I put myself back in the snow and cold to "toughen" up but tbh all I've done is suffer more in an area I used to live and love and where I broke my L-5 at least a few of the 4 times so it's weird :/ not sure if it's good or bad as when I finally do move out of the mtns it'll make other places feel easy at least for a little while. I'm 40 and I was told I'd lose 10-15 years off my expected life span. So I'm trying to decide what to do next and in the next few years as well as using the body I rebuilt fitness wise and having as much fun as my body will allow me now. Life's a salvage mission now it's not an easy reality to accept nor was being told I'm disabled by pain that my back surgery structurally went fine but I broke it too often in too short a time and never really found a way to manage my pain until I burst a disk and needed that fusion and was given fentanyl patches and noticed that in the few short years of sports injuries to my back, the first time I've had to take opiates. I never even took a pill the only way my body knew pain meds was IV stuff during procedures and surgeries. I actually did my own research in a nurses handbook and found oral fentanyl was amazing for breakthrough pain and I could work on it with no "med head" feeling. I would usually start each season free of pain meds but prescribed just in case I chose not to take them due to needing everything I have for competitions and filming steep terrain. But I'd usually finish (aside from the first time I broke my L-5) needing some form of pain control and I have a high acute pain tolerance but I also happen to have a natural tolerance to opiates??? So they used to give me 3 patches a day and 120 suckers or disolvable tablets called fentora. This was the best pain control I ever had but my insurance company won't allow me two forms of fentanyl as I don't have stage 4 cancer. Basically I'm too expensive and won't die soon enough for them to help pay to keep me comfortable and improve my quality of life. I'm so frustrated idk what to do anymore !?

@2cool4school I'm so sorry about that! Wow that is unbelievable the pain you're in. Back in 05 I started feeling it. Being only 27 I thought I was over doing my jogging and the job I was working. As the days turned into the months, it was getting harder & harder for me to get up and move around. One day I got home from work, sat on the the couch and couldn't get up. My gf(ex now) & roommate helped me get up. Was in tears bc I had no clue what was happening to me. After going for testing & getting examined, was told I had RA. thinking of being only in my late 20s never thought I was getting sick.

What sucks is from 2010-2014 the disease was in checked for awhile. Had pain but I could deal with with. When 2015 came around, the pain got worse and now I'm back at square 1. Everyone has some type of arthritis in their body, it depends what type you get. Unfortunately,end up with he worse type that is hereditary which no one on family has.

Used to get methadone for the pain until my pain mgmt Dr took me off it bc he said he gave his patient heart disease. Since I was take off, I've been dealing with the worse type of pain. The stuff I am on now doesn't help and I'm hoping when I finally see a new pain mgmt I'll be back on something that helps.

Was told by nurses their family had my condition & once they moved away from the cold and snow, they were better. It may come for me to get away. Really hope things get better for you

Omg my surgery for the burst disc ftom the fourth L-5 fracture was in '05 too I was just a week from turning 28 Thought shit if I die on the table I won't be in the forever 27 club ;) lol they actually had a problem during my surgery went two hours over stressed out my family and my fiancé at the time got into a terrible fight. After 9 years of not even a micro tiff :/ it was the beginning of the end for him. It was the most painful experience of my life and I've done some painful stuff but I had to be turned 3 times a day to keep from laying on the surgery scar for too long omg 3 days turned into 5 I was so bad off on their recovery I was off the chart they were reaching and got me synthetic thc (marinol) which after 4 days without food instead of apple sauce or chicken noodle soup I ate a bacon cheeseburger my family snuggled in from a gourmet restaurant around the corner. The docs were shocked but happy I was eating so they kept me one more day and let me go unfortunately all the post op eqiuptment like a potty chair a shower chair a sock installer a grabber and a few other things luckily I wore the brace out but my post op brace never arrived. We found out they had all my info correct but wrong city :( made recovery harder. We had to piece together our own kit. But I broke the rules I had to bend at the waist for one very important reason ;) oh well it didn't cause my surgery to fail. My surgeon has maintained a "not my fault not my problem" attitude needless to say we don't work together but in 11 million people in the area I still run into her. Awkward :/

@2cool4school that is as crazy stuff. With me having the RA. Was told that if anyone wants to cut into my back to run. I really miss working out. When I was in high school was that fat kid. Being only 5'6 over 250lbs. Wasn't good growing up. Was made fun of & always picked on. Finally in 1998 I realize it was time to loss the weight. In about 2yrs I dropped almost 100lbs. Kept it off bc I would jog alot daily. Was my form of keeping my stress level down. When I got diagnosed with the RA end up putting on weight to a lit 2009. From 2009-2014 was able to workout again. Was in the best shape of my life, looking and feeling good but the nature of the beast I'm dealing with the RA again and my right ankle is really bad now. Days I can't even put weight on in. Wouldn't know what to do with the sugrery. Really hope you're having a good day!

@McShay1978 awe Hun that's so sweet of you to worry about my day I hope yours is going great 😊