I Have a Special Needs Child

So today I had to take Lucas back to the hospital to be observed. Things were about the same as the last few days, fewer seizures but not much improvement. Still unable to comprehend anything that's going on or where he is. He has some awareness back but not much. They sent us home and were scheduled to go back in three days. On our way home I took him to mcdonalds since he's been very brave and strong lately and I think he deserves it. I fed him his dinner and bought him an ice cream. That made him happy or at least he smiled somewhat. Took him home and gave him a bath cause obviously he can't bathe himself. I let him watch some tv before putting him in my bed to go to sleep. He's asleep now. Before I left my room he was touching my fingers with his, like he was trying to remember something or was trying to show affection towards me. I was really happy he was showing some awareness, also he's been so mad at me and really hated me that him touching my fingers the way he did I really felt a lot of love from him that I haven't felt in a while. It was nice.


I really hope he gets back to normal but I'm a bit worried he won't since he hasn't been improving. I was told that the status elepticus has caused further brain damage but they weren't sure how bad and im starting to get concerned it's more severe. Like this isn't a myth this kind of condition does cause severe brain damage. I mean I love being able to take care of him like I did when he was little. You know feeding him, bathing him, holding him and cuddling with him, reading to him, all that, I've missed doing for him but I want him to have a normal life. I love him and he means everything to me. I enjoy taking care of him but he deserves to be living life Ike a 16 year old should.