I Have a Special Needs Child

So after Lucas's punishment was over and I brought him downstairs to eat dinner he refused to allow me to feed him, that's actually a common occurrence with his eating disorder and blood disease, go I just blended it up and used his G tube. After dinner i told him it was time to get ready for bed, cause part of his punishment is that he has to go to bed early, that's just how it works for him. He wanted to watch tv and I reminded him that he lost his tv earlier when I grounded him, he got upset she started crying, his tantrums consist of mostly him just crying and either throwing things or hitting. I have to calm him down quickly cause his heart rate and blood count can can either drop or rise and that will more than likely cause him to either go into shock (low blood count and heart rate) or have a heart attack or seizure (high blood count and heart rate). So I just held him, the physical contact comfort calms him down, he feels safest when I hold him. We sat in his rocking chair and he sat on my lap and started to calm down thankfully, I rubbed his back a little, then I gave him a bath and gave him his medicine. About a half hour later it became obvious he needed his diaper changed so I took up stairs and lied him down on the changing table and when I removed his diaper there was a lot of blood in it. I panicked and had Dylan call a doctor at the hospital for me while I finished changing and putting a new diaper on him. I explained to the nurse what happened today and all, the nurse said it could be stress from emotional overwhelmness but if nothing else occurs tonight i can't get an appointment for him with the pediatrician tomorrow to just bring him into the ER tomorrow. I mean, he has a blood disease and there's always blood in his diaper, there's blood when he hiccups, sneezes and coughs, blood does come from every opening of his body every day but only a little bit, this was a lot of blood were talking about. I didn't want him to know i was worried cause then he'll start worrying and if it is stress or emotional discomfort that's causing it to happen I don't want to make it worse. I read him a couple of books and by 7:45 tucked him in, his usual bedtime is 8:30 but like I said when he's being punished he goes to bed earlier. I snuggled baby blankie and cubbie in with him and kissed him goodnight. I'll update you guys tomorrow on what I find out.

By the way I'm sorry if this was gross but I can't sleep, I'm worried and I just figured I'd blog about this maybe talk to someone if anybody wants to