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I Am Affected By Meniere's Disease

This week is balance awareness week in the UK.

What is Ménière's disease?

Ménière's disease is a condition of the inner ear that causes sudden attacks of:

feeling like the room is spinning around you (vertigo)
a ringing noise inside the ear (tinnitus)
ear pressure felt deep inside the ear
hearing loss
Symptoms of Ménière's disease
During an attack of Ménière's disease, you may:

feel dizziness with a spinning sensation
feel unsteady on your feet
feel sick or vomit
hear ringing, roaring or buzzing inside the ear
have a sudden drop in hearing
These symptoms, which typically happen all at once, can last minutes or hours, but most commonly last 2 to 3 hours.


Distress is common in people with Ménière's disease, as it's difficult and unpredictable.

(From NHS England)

For me over 12 years or so my menieres has progressed so that I'm almost totally deaf in my left ear, right is a bit better. I have loud roaring (like a jet engine) tinnitus 24x7.

Most days currently I'm reasonably steady but it does feel like the world is always shifting under me esp laying down I feel like I'm spinning over backwards. Some nights sleeping is impossible.

For 18 months until June this year I was experiencing vertigo attacks 3 or 4 times a week. They lasted normally 2-3 hours. It was like someone threw me out of a plane. Luckily a new regime and not working any more seems to be helping.

I get drop attacks at times too

A drop attack is a sudden fall without loss of consciousness...
Drop attacks that have a vestibular origin within the inner ear may be experienced by some people in the later stages of Ménière's disease (these may be referred to as Tumarkin [drop] attacks, or as Tumarkin's otolithic crisis).
(Wikipedia)

They are frightening. I can barely move and speaking is really difficult for a few minutes. During one someone arrived with a defib thinking I'd had a heart attack! By then I could say some words thankfully.

Thank you very much for reading this. If you got to the end put "Inner ear" as the start of your comment.
CoffeeFirst · 56-60, F
Inner ear. I have been experiencing tinnitus to a degree lately, so have been prompted to do some research. Thank you for sharing this important post with us! I'm glad you are doing a little better and heaven forbid should anyone mistakenly defib you!!! Hugs. 🤗
SW-User
@CoffeeFirst my wife assures me they measure your heartbeat before shocking you so it should have refused to do anything but at the time given I on the floor, hurting where'd I'd smacked into a table on the way down, struggling to see clearly and unable to form a sentence it was a stress I could've done without frankly!
CoffeeFirst · 56-60, F
@SW-User No kidding!
SW-User
Inner ear✨ Hugs you sugar this sounds so scary I have no words 😔
Inner ear problems I have those
I had an eardrum burst and my world spinning around while I lay on the floor vomiting - got a lot better
theses days when we travel and there is altitude changes my ears don't pop at the same time anymore
SW-User
@butterflymind1 I have a burst ear drum in left ear now as part of the treatment last year I had a "grommet" installed in my left ear so they can inject steroid injections into the inner ear.
GLITTER · 36-40, F
Inner ear, outer ear, uppie ear, downie ear 😬


Sorry you suffer like that, i get very mild dizziness every now and then (usually when I’m tired) and that’s bad enough. I can’t imagine having it any worse than that 😟🤗❤️
Magenta · F
Inner ear. Thank you for sharing with us.
I sometimes get quite dizzy when I bend over now, if my head is low, and I can't imagine suffering this as you do, and I'm sorry you do.
**hugs**
SmartKat · 56-60, F
Inner ear problems. I hope that they find better ways to make life easier for you - if not outright cure it.
SW-User
@SmartKat it is incurable I believe because whatever is the problem essentially destroys parts of the ear. The best you can hope for is arrestment before you're totally deaf and permanently unbalanced. I'm about 50% there on both of those measures.
PirateMonkeyCabinet · 36-40, M
Inner ear... man, that's harsh. Not gonna pretend to comprehend just how horrible that must feel. It's good that the new regime seems to be helping. Really hope to see more medical progress in this field too, as it can be quite debilitating.

I've only ever had mild BPPV, only a few attacks, although some of my family has it to a much heavier degree than me. That whole sensation of everything spinning, feeling nauseated and pretty much having to lie straight down lest I come crashing down... don't wish that on anyone.

I hope things keep moving forward for you as best they can.

 
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