Only logged in members can reply and interact with the post.
Join SimilarWorlds for FREE »

I Am Terrified

My four month old baby goes in to hospital tomorrow evening and she has her open heart surgery on Monday morning.

It needs to be done, she'll die without it, but it's so unbelievably scary. I just wish we could swap hearts so she could be well.

I'll be staying in a strange city, all by myself with her too. I can handle it, but my energy is drained, I feel like I could sleep for 12 hours. To put it in perspective, the nurse told me most babies like my daughter have to be continuously tube fed. My daughter is on no meds and has always just fed from the bottle. It's so exhausting and I never feel like I'm doing enough. I've got her to 12.5lbs with blood, sweat and tears and all the willpower I possess and I'm seriously in need of rest, which hopefully I might be able to get soon.

Ultimately, I've put everything into getting her big and strong and this will hopefully aid a swift recovery. Please, if you have a moment, send a little positivity our way.
Top | New | Old
Fungirlmmm · 51-55, F
This story gives me hope. We see so many people hurting and no one will step up. In the course of a few moments your post has drawn more than a few persons willing to pray, send good thoughts, or whatever their kind side can give. That is so refreshing and makes me hopeful. Thanks again for sharing.
Starsandfire · 31-35, F
@Fungirlmmm people have been so kind, it makes it a little easier to bear. I'll post updates if I can :)
Fungirlmmm · 51-55, F
@Starsandfire Awesome. I look forward to seeing all the positive improvements she has.
Fungirlmmm · 51-55, F
You and your daughter will have my prayers as you are going through this horribly scary time if your lives. Please let us know how things go.
Fungirlmmm · 51-55, F
@Starsandfire Yes, I have a relative that has down syndrome. One daughter doesn't and one does have Down Syndrome. She has lead a pretty normal life. She is an adult now. She is in college and her parents pay rent for a roommate that is in the psychology department and then an hourly pay on top of it to be her roommate. That way she gets the feel of college life without her parents hovering. She is one of e sweetest people I know. She will never be able to live on her own but she does well.
Starsandfire · 31-35, F
@Fungirlmmm I think most high functioning adults live in supported housing. But time will tell how her life will go. Right now she's full of life, LOUD and smashing all her milestones. We are positive for her future :)
Fungirlmmm · 51-55, F
@Starsandfire That's awesome.
sometimeslonelytoo · 51-55, M
You and your daughter and family are in my thoughts, of course, my friend. I do hope the treatments goes well.
sometimeslonelytoo · 51-55, M
@Starsandfire I doubt anyone could imagine how you're feeling right now. Surely some relief is to follow after a successful procedure.
Starsandfire · 31-35, F
@sometimeslonelytoo masses I should think! I'm scared, but I can't wait for this to be over
sometimeslonelytoo · 51-55, M
@Starsandfire I've not been on here for weeks but look forward to further news about this soon.
aradia11 · 61-69, F
How overwhelming it must be. I am sure the Guardian Angel is watching over her and she will be fine.
I am sending prayers, I hope you get some rest.
Starsandfire · 31-35, F
@aradia11 thank you X
SW-User
Wow! That must be overwhelming. I'm so sorry. A prayer for you both. Hope things go well🤗
Starsandfire · 31-35, F
@SW-User it's pretty much life as we know it now. I'm focusing on afterwards when she's going to feel amazing and we can get on with the good stuff-being a happy family. Just have to keep that at the front of my mind through the next scary and lonely week
SW-User
@Starsandfire I'm a mom.
I understand how your heart aches when your child isn't well.....a painful, helpless ache.

🤗 hugs!
Starsandfire · 31-35, F
@SW-User the helplessness is the most awful part. Not long to go now until things get easier
english · 56-60, M
I am lost for words gobsmacked i wish you and your sweet daughter every possible ounce of hope luck and good fortune over the next coming days .....xxxx
SW-User
My prayers and thoughts are with you and your precious daughter. 🤗
I believe in the power of prayer. Will pray for you both
Quimliqer · 70-79, MVIP
Thinking of you..
Starsandfire · 31-35, F
@Quimliqer thank you, much appreciated
AllAboutLaffs · 80-89, M
Prayers ....

 
Post Comment