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I Suffer From Chronic Pain

I've gotten myself into a dilemma regarding my chronic pain management. I made a choice to taper down from my primary pain medication while I was awaiting a referral to the neurosurgeon. I was expecting surgery to be an option, it was not. Now I've got my primary care physician on a mission to finish the job and take me off this medication. Unfortunately, it's still a necessary evil. I've got another appointment coming up and I'm going to need to put up a fight. Pain management is so misunderstood, all the doctors care about is reducing the amount of these medications so as to no longer prescribe them. Meanwhile, I've been tapered so low that I can't function for a full day. My doctor doesn't care about anything but his bottom line. I'd be on board if only there was some resolution but there is not.

I already know I'm in for a speech about opioid-induced respiratory depression. I've heard it before from other doctors who simply didn't want to cooperate. This is something that happens when you overdose. I've managed to find alternative medications that help, but still need a dose of less than one third the amount I started in with this particular doctor. I need him to accept the progress we've made but put the pain meds back to exactly one-third of what I used to take. He's hell-bent on eliminating them. I don't have the luxury of changing doctors just yet.

Any ideas such as supplementary medications to combat OIRD? I know it's entirely not necessary, but I've got to counter his argument well and get my life back. From my experience, you can't get a doctor to listen to you and they're going to do what they want regardless. I've read of medications used for COPD that could effectively lessen the risk of OIRD. Naloxone is out of the question unless it is in a compounded formula with another opioid and doesn't have any effect on the analgesic properties. Thanks in advance for any recommendations.
2cool4school · 46-50, F
I’m so sorry that you’re in this situation and I can definitely relate. I’ve tapered down more than once for different reasons and I’m currently at less than 1/3 of my highest dosages but I’m not very functional and it’s frustrating to be on meds when they still work but not unless I have the right amount. My prescribing doctor seems like he just wants to get rid of the responsibility of my pain care and I just want to have the ability to control my pain enough to make it possible to take care of myself and live independently as I don’t know anyone in my area and friend base to ask for help so it often falls to my parents and I don’t want them to feel like they have to be there for me as they are stretched pretty thin helping my sister out with caring for their grandchildren and I know it’s not easy for them but I would prefer that they have the choice to decide what they spend their time and energy on. I’m so sick of feeling like a burden on top of the stress of being in pain nonstop and without any pain relieving assistance. It’s frustrating and scary to think about my future. 😔
BananaBrown · 41-45, F
Seek out a pain management clinic/doctor. You can continue to see your PCP, and also go to a pain clinic. PCPs are generally only concerned with primary care (short term), and are not equipped to deal with long term, chronic illness. It sucks having to go to multiple “specialty” doctors, but unfortunately that is the age in which we live. In my experience, PCPs are good for giving cold medicine and referrals, not much else.
StrayTom · 41-45, M
@BananaBrown Thanks for the input! I do believe that could be the next step here. I do, however, have an aversion to pain clinics from poor past experience. I cannot have steroidal injections which are all the rage these days, I have a very bad reaction psychologically. Granted I've only been referred to once before, all they were interested in doing was to eliminate the medication as well. I guess I should be open to the possibility that they might actually do their job correctly, but I agree to have more specialists/etc. is a pain in the ass...
User41 · 36-40, M
is there an audiobook version of this?
StrayTom · 41-45, M
@User41 I know, I know. TLDR would've been appropriate...
User41 · 36-40, M
Lol I’m just fucking around.

You do you dude. Write long ass things if it’s therapeutic to do so.

@StrayTom

 
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