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I Have Hypopituitarism

I was diagnosed panhypopituitary in early 2015; Though actually I think its probably hypopituitary, as I seem to still produce ADH and so don't have diabetes insipitus. I'm missing cortisol, thyroid/thyroxin, growth hormone/somatropin, and FSH and LH (hence testosterone). - My aldosterone is normal (the one time they measured it), which I think is normal for hypopituitary compaired to primary hypocortisolism/Addison's. Never had my DHEA measured, though I may try push them to measure that soon. I'm replacing cortisol (with prednisolone I was unable to tollerate taking hydrocortisone), I inject growth hormone every night, and get a testosterone IM injection every 16 weeks (I think it is 16 ATM), for testosterone, as they didn't think gel would work, with my testosterone being basically zero. I tried taking levothyroxin, but it made me so ill, and the Drs seem reluctant to use T3 only, as I have an aortic anneuryssm, but, they're discussing starting some kind of thyroid med, so I assume either they'll decide I can have T3, or perhaps try a liquid levothyroxin, as it was probably the extra compounds in the levothyroixin tablets, that made me so vilently ill. - Started GH at the beginning of this year, and stopped levo soon after; since when I've felt so much better, joined th the gym, started controlling my diet, and lost about 40 Lb so far; the weight gain with the steroids was just aweful. I get a lot of problems now with the acne, caused by the steroids, and also appear to have developed ostioporosis, though as they didn't measure my bone density before I started steroids, its possible I had that already and the steroids are just making it worse. - I think I'm what they call a 'complex' patient; I had hodgkin's lymphoma in 2015 too, and over my lifetime I've now had two brain hemoridges, plus one road traffic accident (they think the accident was responsible for the hypopituitary). also, I now have the aneurysm, which they have no clue why I have it, as my BP is always low, and now this ostioporosis. Last time I was at hospital, I also discovered I've got two fractured spine vertibrey, though the implication was these are old fractures, that were evident on an old CT scan; only no one had told me about them? - TBH, I find my treatment medically apauling, I've a biomedical background myself, and the Drs are pretty much all medically incompetant; heck one Dr failed to do his four times table correctly; and started me on 6 MG of prednisolone, not 5 as he'd intended; I had to point out to him the mistake in his calculation 4 * 6 = 20.... and pointed out to him the sum he ment was 5 X 4 = 20, to get me a prednisolone dose the same as 20 MG HC. my dose is now rduced again though, I useually take just 4 MG pred a day, rougly the same as being on 16 MG HC. I just don't feel like I'm me anymore, nothing seems real, tangible, and I have found the hypopituitary harder to deal with than having cancer and its treatment was. But I'm still fighting on, now, getting very physically fit, with all the gym etc, probably fitter than ever I was even in my twentys (I'm now 40). But, this disease is truely terrible.
Bleed · 41-45, F
Take a look at the website stop the thyroid madness. There's lots of great information on there.
Lots of patients don't do well on levothyroxine you're not alone there. There is T3 only which is another synthetic drug but there is also a third option NDT natural dedicated thyroid. It comes from pigs so it contains all 5 of your thyroid hormones including T4 and T3.
I don't know anything about your heart condition but T3 helps to stabilise your heart. Too much T3 can be bad but not enough can cause lots of problems like it being slow and arrhythmias.

 
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