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I Love Movies

the little boy in England reminds me of a movie I watched in middle school. it was called Lorenzo's oil. and based on the real life struggle of Lorenzo odone who was in 1983 was diagnosed with adrenoleukodystrophy. a disease that gradually killed boys than within 2 years of diagnosis. what about Charlie gard's case with this movie is that like Charlie's parents. Lorenzo's parents wouldn't accept that their son would gradually die and there was nothing they could do. also reminds me is this disease also eventually turned the boy into what most thought was a vegetable state though as Lorenzo got better they realize that his thought pathways still worked so he was really locked up in his brain unable to speak or move but he was still there. Lorenzo's parents worked hard and a treatment was developed that has no prevented 1000s of boys with this disease from getting to that stage cause if caught early enough it stops the progression of the disease. It didn't completely reverse the effects on Lorenzo but it did make him increasingly a lot better. and instead of dying within a few years Lorenzo died in 2008 the day before his 30th bday. 23 years longer than the drs told his parents he most likely would survive.
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Mountainlady16 · 22-25, F
@RisingPhoenix my mom says its hard be it terminal or not to have a child with a disease that you cant do anything about. i was born with alopecia universalis and i know its nothing like what Charlie is enduring it is also encurable and has no effective treatments. and in the case of my disease no one even knows what is the cause of it.
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Mountainlady16 · 22-25, F
@RisingPhoenix that's true and sometimes that means not doing anything at all. i remember when i was 13 and i gone through a 2nd round of shots to try to stimulate hair growth. i told my parents no more i couldn't take it no more. these shots were 20 shots in my head one at a time every other week for 6 months. not only did it hurt like hell but it did nothing. ironically when i got pregnant with my son was first time i ever had hair in my life but alopecia is unpredictable and this time with my current pregnancy the reverse is happening. its falling out again. when i put my foot down my parents never forced me to try another treatment. they felt that it was my choice.

 
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